Colt McCoy motivates Frisco teen with cerebral palsy
by STEVE STOLER / WFAA-TV
Posted on February 9, 2010 at 9:24 PM
FRISCO — Zach Wester, a 15-year-old high school freshman from Frisco, is learning to walk again -- with the help of a Texas superstar.
Zach has cerebral palsy. He endured three surgeries to correct scoliosis. He set a goal for himself to walk 50 feet without resting. The Wakeland High School freshman underwent his first surgery when he was a third-grader. Since then, he's had two other surgical procedures.
After the last one, he could only crawl on his hands and knees. Zach’s father, James Wester, said his initial progress was very limited. “So for him to finally be able to heal up enough to be able to get moving and walking that far — it's been a long road," Wester said.
The sounds from the school's loudspeakers blared: “This is Colt McCoy, University of Texas quarterback.” As Zach's friends, family and aides converged on the school auditorium for his attempt at his goal, a recorded message was played from McCoy. Zach's face lit up with joy.
“To get a message like that, it made such a big difference to him, and his reaction was priceless," said Marisa Wester, Zach’s mother. After getting a boost from the Longhorns' quarterback, Zach started his 50-foot journey. Slowly he inched across the floor. As he got closer to his goal, the cheers got louder.
Zach made it. “I did a really good job," he said. And as he sat back down in his wheelchair, Zach gave one last gesture to his adoring fans and favorite quarterback: A "Hook ‘em Horns" sign.
E-mail sstoler@wfaa.com
Labels: Cerebral Palsy, Scoliosis, walking
03 January 2010
Walking Under Water For Cerebral Palsy
Labels: Cerebral Palsy, walking, water
09 October 2009
Walking a bit further
28 September 2009
Walking a bit further today
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Today, I managed another 0.2KM which means I have managed 0.6km in 2 days
Labels: walking
27 September 2009
Starting to build up my walking
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I managed to walk there and back which is about 0.4KM which might not sound a great distance, but it is for me as not walked very much at all before I had my operation
13 September 2009
Getting up the following day
Well after a bit of a unsettled night all seemed ok I was able to get washed and ready, the Mr Papastefanou came to see me as promised to see how I was doing and also to arrange for me to go and have an x-ray during the day. I said that I was feeling good and happy to get up with the Physio's when they came around. Luckily I didn't have to wait long after before they came. I explained to the Physio that I had my own way of getting out of bed, and that I would try it and if I struggled then I would use there way, and she was happy with that, so I rolled into action being careful not to pull my stomach too much because it was sore. I then said that I hadnt walked too far since October last year, but wanted to see how far we got. As soon as I stood up it was a odd feeling, although I knew that I was going to be ok walking some. Off we went into the ward and I manged slowly to get to the nurses station, and the Physio said well your safe for home as far as im concerned. I thought she was joking but it seemed not.
Anyway her assitant brought my chair and it was nice to sit down, albeit a little painful, but as soon as I got settled I was free and back in my wheels, so I could move around the ward and go off the ward with permission if I wanted too, but I didnt stray too far, because I knew it was coffee time soon and I was waiting for x-ray. Coffee came and I enjoyed it because the lady gave me some biscuits and on talking to her, we realised that she was the tea lady on ward 44 at Middlesbrougfh General when I got my back done 6 years ago, and she remembered me.
After lunch I saw the porter and I knew I was going for my x-ray, he asked me if I would prefer to get on the trolley here or down in the department. I said here, so the nurse who had been looking after me came and helped me onto the trolley and we left my chair outside the room for when I came back. I remember as I was getting on to the trolley my head went back and the nurse said you do everything with that head, because she knew that I kind of move myself with my head sometimes, but she also knew that if I didnt control it back and it fell back it can cause extensor spasms so she quickly supported me and helped me move better onto the trolley. The reason she knew about the spasms was because she also looked after me during first back surgery. We were off it sort of felt good as not left the ward since Tuesday and although it had only been 2 days I had forgot what my surroundings were like.
The x-ray didn't take long although I was quite tired by this point and I couldn't wait to get back to the ward so that I could go to bed. When we got back to the ward the nurse on duty could see that I was tired and uncomfortable, and gave me the choice of my wheelchair or going to bed, "bed please I have had enough for today", so they got a pat-slide and moved me into my bed and it was heaven, just to lay down, and wait for family to visit
Anyway her assitant brought my chair and it was nice to sit down, albeit a little painful, but as soon as I got settled I was free and back in my wheels, so I could move around the ward and go off the ward with permission if I wanted too, but I didnt stray too far, because I knew it was coffee time soon and I was waiting for x-ray. Coffee came and I enjoyed it because the lady gave me some biscuits and on talking to her, we realised that she was the tea lady on ward 44 at Middlesbrougfh General when I got my back done 6 years ago, and she remembered me.
After lunch I saw the porter and I knew I was going for my x-ray, he asked me if I would prefer to get on the trolley here or down in the department. I said here, so the nurse who had been looking after me came and helped me onto the trolley and we left my chair outside the room for when I came back. I remember as I was getting on to the trolley my head went back and the nurse said you do everything with that head, because she knew that I kind of move myself with my head sometimes, but she also knew that if I didnt control it back and it fell back it can cause extensor spasms so she quickly supported me and helped me move better onto the trolley. The reason she knew about the spasms was because she also looked after me during first back surgery. We were off it sort of felt good as not left the ward since Tuesday and although it had only been 2 days I had forgot what my surroundings were like.
The x-ray didn't take long although I was quite tired by this point and I couldn't wait to get back to the ward so that I could go to bed. When we got back to the ward the nurse on duty could see that I was tired and uncomfortable, and gave me the choice of my wheelchair or going to bed, "bed please I have had enough for today", so they got a pat-slide and moved me into my bed and it was heaven, just to lay down, and wait for family to visit
Labels: artificial disc replacement, mobile, Physiotherapy, walking
25 June 2009
Physical therapist explains machine that helps patients walk
Jun 22, 2009 (Lodi News-Sentinel - McClatchy-Tribune Information Services via COMTEX) --
Lodi Memorial Hospital is the only place in the greater Sacramento and Modesto areas that has a new piece of equipment available to patients seeking to improve their ability to walk normally again.
This includes those who have suffered from a stroke, an incomplete spinal cord injury, cerebral palsy or, like Linda Barnard, of Sacramento, multiple sclerosis.
After being diagnosed with multiple sclerosis 10 years ago, Barnard was steadily losing her ability to walk. The disease worsened until the former athlete struggled to walk independently from her office to a nearby restroom at work.
Barnard, a marriage-family therapist in the Sacramento area, learned about the machine through one of her clients, who saw a segment on the "Today" show. When she Googled the nearest location, she found it in Lodi.
In the last six months, Barnard has regained enough mobility to stroll around a golf course. The 59-year-old attributes her full recovery to the NESS L300, a new FDA-approved wireless electronic device.
"It really works. I can already see positive benefits," she said.
The NESS L300 is worn in two parts, a small transmitter in the shoe and a device strapped below the knee. When a patient tries to walk, the L300 sends electronic signals to stimulate the peroneal nerve which, in turn, signals under-active muscles to help patients lift their foot off the ground and get them walking again.
Barnard's physical therapist, Jason Locke, at the hospital's outpatient clinic, explained how the NESS L300 can help people learn to walk again.
How does this machine work?Basically how the machine works is, we use a cuff that goes on the lower leg, which we connect electrodes to that stimulate the muscles of the foot.
A gait sensor in the shoe acts as a switch. When the person is walking, the machine will sense the pressure and turn the machine off ... so there's no contraction of the muscle. When your foot is on the ground, you don't need that muscle.
When you lift your foot, that sensor turns the machine on.
When it comes to physical therapy, what is 'foot drop'?It's just a general term for the foot not to be able to come up for walking.
For Linda, who has MS, it's a central nervous system disorder. If you compare it to an electrical generator for our home, it sends power to turn on the lights. Our brain is very similar. It sends a message through our brain to our muscles.
How is this machine unique to others that offer similar results?We've been using electrical stimulation for a long time. (The NESS L300) is just the wireless technology that enables us to make a big impact for patients.
It's more functional for them because the physical therapist doesn't have to program anything. In the past, we would have to get the electrodes in the right place every time to stimulate the muscles.
I understand there are not many of these machines around. How did Lodi Memorial come to acquire one?We heard about the technology about a year-and-a-half ago, and we were able to acquire it by a generous donation by the hospital and the auxiliary.
They are very expensive. A take-home unit is about $6,000 and doesn't include all the auxiliary equipment we need here, including a PDA that stores all of the patient information.
How have you come to believe it can help people regain mobility?I think the biggest thing is that it provides some functional return. It makes people more functional again.
Most of these people who have foot drop are using some sort of brace. It's cumbersome and not natural at all. This unit has created a functional way to improve their lives. Lots of people walk faster, their gait improves and they can walk on uneven ground a little better, especially stepping over hills.
It also reduces tone (in the leg). It's like the idling speed in your car. The patient who has had some sort of brain injury, their tone usually runs too high in the legs. It's just more rigid, and it's hard to move. This machine allows people to move a little better.
What have patients who have used the machine said about it?I had one patient who wasn't able to walk very well because of fatigue. This machine has enabled her to walk further.
A year-and-a-half ago she was able to walk around Disneyland when she was only able to walk from bench to bench before, because she would lose her balance or fatigue.
It's been amazing to see people who have had a life change and how this has positively affected their lives. We've had some patients come from Nevada, and one from as far away as Bakersfield.
Free patient screeningWhen: Wednesday from noon to 4 p.m.
For more information: 333-3136.
Lodi Memorial Hospital is the only place in the greater Sacramento and Modesto areas that has a new piece of equipment available to patients seeking to improve their ability to walk normally again.
This includes those who have suffered from a stroke, an incomplete spinal cord injury, cerebral palsy or, like Linda Barnard, of Sacramento, multiple sclerosis.
After being diagnosed with multiple sclerosis 10 years ago, Barnard was steadily losing her ability to walk. The disease worsened until the former athlete struggled to walk independently from her office to a nearby restroom at work.
Barnard, a marriage-family therapist in the Sacramento area, learned about the machine through one of her clients, who saw a segment on the "Today" show. When she Googled the nearest location, she found it in Lodi.
In the last six months, Barnard has regained enough mobility to stroll around a golf course. The 59-year-old attributes her full recovery to the NESS L300, a new FDA-approved wireless electronic device.
"It really works. I can already see positive benefits," she said.
The NESS L300 is worn in two parts, a small transmitter in the shoe and a device strapped below the knee. When a patient tries to walk, the L300 sends electronic signals to stimulate the peroneal nerve which, in turn, signals under-active muscles to help patients lift their foot off the ground and get them walking again.
Barnard's physical therapist, Jason Locke, at the hospital's outpatient clinic, explained how the NESS L300 can help people learn to walk again.
How does this machine work?Basically how the machine works is, we use a cuff that goes on the lower leg, which we connect electrodes to that stimulate the muscles of the foot.
A gait sensor in the shoe acts as a switch. When the person is walking, the machine will sense the pressure and turn the machine off ... so there's no contraction of the muscle. When your foot is on the ground, you don't need that muscle.
When you lift your foot, that sensor turns the machine on.
When it comes to physical therapy, what is 'foot drop'?It's just a general term for the foot not to be able to come up for walking.
For Linda, who has MS, it's a central nervous system disorder. If you compare it to an electrical generator for our home, it sends power to turn on the lights. Our brain is very similar. It sends a message through our brain to our muscles.
How is this machine unique to others that offer similar results?We've been using electrical stimulation for a long time. (The NESS L300) is just the wireless technology that enables us to make a big impact for patients.
It's more functional for them because the physical therapist doesn't have to program anything. In the past, we would have to get the electrodes in the right place every time to stimulate the muscles.
I understand there are not many of these machines around. How did Lodi Memorial come to acquire one?We heard about the technology about a year-and-a-half ago, and we were able to acquire it by a generous donation by the hospital and the auxiliary.
They are very expensive. A take-home unit is about $6,000 and doesn't include all the auxiliary equipment we need here, including a PDA that stores all of the patient information.
How have you come to believe it can help people regain mobility?I think the biggest thing is that it provides some functional return. It makes people more functional again.
Most of these people who have foot drop are using some sort of brace. It's cumbersome and not natural at all. This unit has created a functional way to improve their lives. Lots of people walk faster, their gait improves and they can walk on uneven ground a little better, especially stepping over hills.
It also reduces tone (in the leg). It's like the idling speed in your car. The patient who has had some sort of brain injury, their tone usually runs too high in the legs. It's just more rigid, and it's hard to move. This machine allows people to move a little better.
What have patients who have used the machine said about it?I had one patient who wasn't able to walk very well because of fatigue. This machine has enabled her to walk further.
A year-and-a-half ago she was able to walk around Disneyland when she was only able to walk from bench to bench before, because she would lose her balance or fatigue.
It's been amazing to see people who have had a life change and how this has positively affected their lives. We've had some patients come from Nevada, and one from as far away as Bakersfield.
Free patient screeningWhen: Wednesday from noon to 4 p.m.
For more information: 333-3136.
Labels: Cerebral Palsy, multiple sclerosis., Physiotherapy, walking
15 February 2009
Stem cell transplant reverses early-stage multiple sclerosis
12 Feb 2009
Researchers from Northwestern University's Feinberg School of Medicine appear to have reversed the neurological dysfunction of early-stage multiple sclerosis patients by transplanting their own immune stem cells into their bodies and thereby "resetting" their immune systems.
"This is the first time we have turned the tide on this disease," said principal investigator Richard Burt, MD, chief of immunotherapy for autoimmune diseases at the Feinberg School. The clinical trial was performed at Northwestern Memorial Hospital where Burt holds the same title.
The patients in the small phase I/II trial continued to improve for up to 24 months after the stem cell transplant and then stabilised. They experienced improvements in areas in which they had been affected by multiple sclerosis including walking, ataxia, limb strength, vision and incontinence. The study will be published in the March issue of the Lancet Neurology.
Multiple sclerosis (MS) is an autoimmune disease in which the immune system attacks the central nervous system. In its early stages, the disease is characterised by intermittent neurological symptoms, called relapsing-remitting MS. During this time, the person will either fully or partially recover from the symptoms experienced during the attacks. Common symptoms are visual problems, fatigue, sensory changes, weakness or paralysis of limbs, tremors, lack of coordination, poor balance, bladder or bowel changes and psychological changes.
Within 10 to 15 years after onset of the disease, most patients with this relapsing-remitting MS progress to a later stage called secondary progressive multiple sclerosis. In this stage, they experience a steady worsening of irreversible neurological damage.
The 21 patients in the trial, ages 20 to 53, had relapsing-remitting multiple sclerosis that had not responded to at least six months of treatment with interferon beta. The patients had had MS for an average of five years. After an average follow-up of three years after transplantation, 17 patients (81 percent) improved by at least one point on a disability scale. The disease also stabilized in all patients.
In the procedure, Burt and colleagues treated patients with chemotherapy to destroy their immune system. They then injected the patients with their own immune stem cells, obtained from the patients' blood before the chemotherapy, to create a new immune system. The procedure is called autologous non-myeloablative haematopoietic stem-cell transplantion.
"We focus on destroying only the immune component of the bone marrow and then regenerate the immune component, which makes the procedure much safer and less toxic than traditional chemotherapy for cancer," Burt said. After the transplantation, the patient's new lymphocytes or immune cells are self-tolerant and do not attack the immune system.
"In MS the immune system is attacking your brain," Burt said. "After the procedure, it doesn't do that anymore."
In previous studies, Burt had transplanted immune stem cells into late-stage MS patients.
"It didn't help in the late stages, but when we treat them in the early stage, they get better and continue to get better," he said.
"What we did is promising and exciting, but we need to prove it in a randomised trial," Burt noted. He has launched a randomised national trial.
(Source: Northwestern University : Burt R. Stem cell therapy for patients with multiple sclerosis failing interferon A randomised study. Lancet Neurology. : February 2009)
Researchers from Northwestern University's Feinberg School of Medicine appear to have reversed the neurological dysfunction of early-stage multiple sclerosis patients by transplanting their own immune stem cells into their bodies and thereby "resetting" their immune systems.
"This is the first time we have turned the tide on this disease," said principal investigator Richard Burt, MD, chief of immunotherapy for autoimmune diseases at the Feinberg School. The clinical trial was performed at Northwestern Memorial Hospital where Burt holds the same title.
The patients in the small phase I/II trial continued to improve for up to 24 months after the stem cell transplant and then stabilised. They experienced improvements in areas in which they had been affected by multiple sclerosis including walking, ataxia, limb strength, vision and incontinence. The study will be published in the March issue of the Lancet Neurology.
Multiple sclerosis (MS) is an autoimmune disease in which the immune system attacks the central nervous system. In its early stages, the disease is characterised by intermittent neurological symptoms, called relapsing-remitting MS. During this time, the person will either fully or partially recover from the symptoms experienced during the attacks. Common symptoms are visual problems, fatigue, sensory changes, weakness or paralysis of limbs, tremors, lack of coordination, poor balance, bladder or bowel changes and psychological changes.
Within 10 to 15 years after onset of the disease, most patients with this relapsing-remitting MS progress to a later stage called secondary progressive multiple sclerosis. In this stage, they experience a steady worsening of irreversible neurological damage.
The 21 patients in the trial, ages 20 to 53, had relapsing-remitting multiple sclerosis that had not responded to at least six months of treatment with interferon beta. The patients had had MS for an average of five years. After an average follow-up of three years after transplantation, 17 patients (81 percent) improved by at least one point on a disability scale. The disease also stabilized in all patients.
In the procedure, Burt and colleagues treated patients with chemotherapy to destroy their immune system. They then injected the patients with their own immune stem cells, obtained from the patients' blood before the chemotherapy, to create a new immune system. The procedure is called autologous non-myeloablative haematopoietic stem-cell transplantion.
"We focus on destroying only the immune component of the bone marrow and then regenerate the immune component, which makes the procedure much safer and less toxic than traditional chemotherapy for cancer," Burt said. After the transplantation, the patient's new lymphocytes or immune cells are self-tolerant and do not attack the immune system.
"In MS the immune system is attacking your brain," Burt said. "After the procedure, it doesn't do that anymore."
In previous studies, Burt had transplanted immune stem cells into late-stage MS patients.
"It didn't help in the late stages, but when we treat them in the early stage, they get better and continue to get better," he said.
"What we did is promising and exciting, but we need to prove it in a randomised trial," Burt noted. He has launched a randomised national trial.
(Source: Northwestern University : Burt R. Stem cell therapy for patients with multiple sclerosis failing interferon A randomised study. Lancet Neurology. : February 2009)
Labels: ataxia, Balance, cancer, limb strength, multiple sclerosis, Stem cell transplant, vision and incontinence, walking