Stockton International Riverside Festival kicks off in style
The Flying Dragon Circus, a groundbreaking celebration of the very best of Chinese and European circus traditions, takes centre stage at the five-day festival.

East meets west, boy meets girls, and monks and punks fly in the show, which premiered in Beijing in May to great acclaim.
Promising family-friendly fun, the Flying Dragon Circus warmed up with a full rehearsal yesterday before performing to the amazed crowds in an 800-capacity tent at Stocktonâs Trinity Gardens last night.
Commissioned by Stockton International Riverside Festival and partners Culture 10 and Beijing Chaoyang Intercultural Association, the show is produced by Event International and directed by Pierrot Bidon, French founder of the famous Archaos circus.
Frank Wilson, Festival artistic director, said: âWith interest in Chinese sport and culture at an all time high with the imminent Olympic Games, Flying Dragon Circus is a must-see attraction.
âThe exhilarating performances show the grace and dexterity of Chinese circus tradition and the truly stunning aerial skills of the British artists.â
Mr Wilson said the show did âexceptionally wellâ on its European premier in Newcastle earlier this month and was a âworthy highlightâ for the festival.
Catch the Flying Dragon Circus every day of the festival, times are: today â 2pm and 8.30pm; tomorrow - 7.30pm; Saturday â 2pm and 7.30pm; Sunday â 2pm and 7pm. Tickets ÂŁ12.50, ÂŁ5 for concessions and family tickets (two adults and two children) ÂŁ25.
The show features an original score performed live by Chinese musicians and Newcastle band The Baghdaddies, who also feature at the SIRF Festival Club which returns to ARC after five years.
The Club will see performances from Maybe Myrtle Turtle and local favourites the Wildcats of Kilkenny tonight, tomorrow and Saturday starting at 10.30pm.
Meanwhile catch the start of SIRFâs colourful world class street theatre throughout Stockton town centre from midday today, including giant slinkies, trampolining acrobats, hip hop dancers and break neck stiltwalking.
For information visit www.sirf.co.uk or upload your festival pictures at www.flickr.com/groups/sirf2008
Todayâs line-up and locations
Trinity Green
14:00 Flying Dragon Circus
20:30 Flying Circus
Parish Church Gardens
12:00-17:15 Honey
22:00 Suma
Municipal Buildings Car Park
12:00-21:45 Winter
High Street
11:00-18:00 Camera Obscura
12:00-15:00 ChromaVan
12:00 Great Scott
12:45 Desert Island Discs
13:30 14:15 14:30 Peep
15:15 Great Scott
15:45 Le Grand Peep Show
18:00-21:00 ChromaVan
19:00 La Grosse Couture
19:30 Peep
20:00 An African Circus
20:30 Le Grand Peep Show
21:00 Trampoline Mission 3
Arc
22:30 Festival Club
Labels: Stockton-on-Tees
30 July 2008
Accountability
I'm here to tell you that there is a hand full of us who have Cerebral Palsy or a learning disability who's paralyzes is very slight or mild. We are the exceptions. We will do anything, and go to ANY lengths to be accountable, responsible, ethical, earnest, and answer up to our actions, need, wants, and desires. We will put ourselves right out their on the line. We will tell people how we feel, we will be honest and truthful, and we will get slapped in the face and rejected because of it! People just don't want to own up or be accountable to US! The norm is just not that way. They want little or nothing to do with us. They want their fee's, but when you ask for yourself... well, they want you to do it for nothing!
For those of us like myself, how are we, then, suppose to make it in society? How are we truly suppose to support ourselves? How are we to get along in a world when we won't be treated as an equal? I ask you? It's getting worse and worse out there. The economy is not getting ANY better, politicians are out for their own political agenda. And, if the government doesn't care, and they keep cutting our benefits, as well as our yearly Social Security cost of living increases. By their actions, they are telling us with disabilities, that we are not important or mean anything to society. They don't care enough to recognize us, our talent, or our abilities, and they frown upon anyone who does...how is it then, that they are really giving us a so called chance. Where is the real compassion to be accountable to help those who are desperately trying to help themselves.
We try so hard to do everything possible to walk, beyond what we've known to make a new and better life for ourselves, and, yet, repeatedly, we are hit down with a sledge hammer to keep us in the same place and predicament we have known from the get go.
All I know is that I am getting a very thick coat and armour, I also know that I personally would give my right, good, arm to help someone who needed it; weather they had the money or not. I would help them feel worthy and have the self-confidence and worth in their heart and soul of succeeding.
I must be honest with all of you when I say this really hurts and breaks my heart
Labels: Cerebral Palsy, learning
Self-Determination
It has been like a trusted servant, or a very good friend, guiding, guarding and lighting my way. It was always there when I needed to call on it; especially when I came to major turning points in my life, and I needed guidance, answers, and protection.
I somehow knew I could turn to it, and rely upon it. It never turned me away, nor did it steer me wrong! It was always there, right in the pit of my gut, right near my heart. And the times I did not listen, it made me see and become that much more aware of just how important it was to do so. I could turn to it in a split second. When I needed it the most.
I would listen very carefully to its quiet, gentle voice. And I would listen to what it was telling me to do or what road to follow. If I was patient enough, and willing enough to go through the feelings and the emotions, I would always get the answer's I was looking for or needed.
When experts or individuals told me... ahhhh sweetheart, you know that this task is too difficult for you;... or, you know you have trouble learning... I would proved them wrong. I would literally take matters into my own hands without verbally speaking or saying a word to anyone. Them telling me I could not do something would fire me up inside, made me angry, and thus, gave me the motivation I needed to prove them wrong.
These were some of my most intuitive moments. I seemed to be able to hear what they were saying, tune them out, know that, that was their opinion, and intuitively knew that they were wrong in the pit of my gut. Somehow I was able to work these feelings and emotions out, released the negative impact these words, phrases, and tapes had upon me, and turn them around to become a positive and all powerful force within myself. I would become steadfast in my thinking, and affirm what I wanted to change within myself and who I wanted to become. Thus, believing in myself when no one else did, and acting on those beliefs within myself, ultimately transformed my life.
I am so very grateful to myself, because who knows what kind of person I would have become, if I did not listen or allow myself to be the unique individual that I am.
Labels: learning
Scrutinized
I have talked up for myself, been faithful to myself, and, I have been determined to be treated with dignity and respect! When employers, co-workers, organizations, or individual's rewarded those around me who were talking down, behind, and around my back, or taking credit or advantage, of a current situation for something I did. I was also wrongly scolded for being dressed inappropriately for teaching a fitness class, while being hired as a fitness instructor, too.
In each of these situations, I spoke up for myself and stood my ground. I never sold myself short. I lived by a standard of truth, honesty, integrity, and doing my job to the best of my ability and then some. I went above and beyond in all my duties, and gave a 120 % with all the goodness in my heart
Today, I know differently
And, because of this, I have been able to rise above it all. I have been accountable and responsible for all my actions and conducts. I have accomplished goals in my life, step by step that other's may have looked disapprovingly of. Because of my motivation and willingness to succeed in every area of my life, I have been insulted, scorned, made fun of, studied, and criticized to the hilt. I have been examined, and looked down upon, and grudgingly made to feel small. Moreover, I have been looked at very closely and thoroughly with peering eyes. And still, I have been looked at with such discuss, objection, and in such a hypocritical, disconcerting kind of way, that it truly hurt.
These people found careful and meticulous ways to get rid of me. They found ways for me to be the bad girl These individuals called my left arm a wing and mimic my limp and how I walk!
Why! Well, I don't really know- But these high ranking bosses were from a host of well known organizations that are still around and in existence today. These are people who call themselves professionals, who also call themselves compassionate- they thought they knew more or new better than me. Unfortunately, these professionals in the disable field, employers, psychologist, and doctor's are way too many.. Actually to think about now, bother me, or hurt me anymore in my life, because I have moved on and away from the hurt, pain, and residue. I have healed and truly want to let go of these memories that have shaped my life. I want to help others, instead, to work thought their own- by what I have experienced in mine.
These so called professionals have wanted to probe my physical well being, and make sure I was emotionally stable- They have investigated and inquired into my life in ways that made me feel humiliated, judged, less than normal, scared, nervous, hopeless, and even helpless at times, but I was like a Trojan horse ready to surpass attack. I kept carrying on despite them, in an honest, triumphant, and truthful way.
Instead of making an individual comfortable within their own being, and rewarding them for their conscientiousness and integrity, they made me feel like I was on trial, or was a criminal who had committed the worst kind of crime!
Why, you may be asking yourself? Because I worked my hardest with the abilities I had before me I worked to accomplish my duty's all the time. I worked with an accuracy and a perfection, and I always came into work happy, with a kind word, and a smile on my face looking forward to each and every day. I never let my Cerebral Palsy or learning disability get in my way. I worked to over-come them, as I worked to be like the norm, and I did what was asked of me no matter what.
Most the times, though, my work was better. It was better than a person without a disability! I never worked to compete with others. I worked to accept and be in harmony with those around me, however, they could not, see it! I wanted so desperately wanted to fit in, I wanted them to accept me for me, the hard work I completed and performed, and as an equal, individual wanting to work in the work place as a team player, a leader with a balance. An individual with the same qualities as everyone around me. I wanted to be equal to, or have the same kind of equivalents as them all.
But I know differently now! I know what this world is like. I have dealt with people, and have had many experiences to make me strong, which alert me to these acts of in-humanity. I have been introduced and made aware of- and have lived in a world where people have this ruthless way about then, where they must be better than the next guy, desiring more success, greed, power, and control.
These people could not, nor were they willing to, so they hurt me and belittled me in the process. They did everything they could with-in their power to make me believe contrary to the truth at hand. But I grew up, and I saw beyond the truth, and, their conniving ways. They tried to put me down, and pull the wool over my eyes, in ways that were de-humanizing! In the long term I rose above them all! And I am grateful for these lessons. I am indebted to them as I came out the winner, Maybe not financially, But morally, I did indeed!
These people have been very threaten of me, and the way I conducted myself. They were intimidated, and afraid that I could do better or go farther and, you know what- I did! I really did! Perhaps I did do a better job- perhaps, better with one hand, then they could with two!
But with all judgment aside, and all do respect, these professional in these communities were indeed threaten of me. They were frighten of, or overawe as a hostel individual or human being of what I said, stood for, or was trying to do in my job, life, as an honest, free of deceit, whole-hearted manner.
Thus, I have set my own bar of excellence. And, I have continued to raise it. Yes, I may not have held a full time career like the norm, but I have lived my life by my own standards of truth, and honesty. I have had the soundness of thought and mind to live my life in a mindful and whole way, with internal consistency, and lack of corruption.
I have lived my life today never doubting myself, my abilities, my good character, my principles, or by selling myself short in a deceitful, conniving way.
Thus, in closing, I will continue to live my life in a trustworthy, dignified, truthful, sincere way, and to be a light and an example for others to emulate.
Labels: back pain, Balance, Cerebral Palsy, dignity, Disability, Humanity.
Normal - So what is normal
So what is Normal to you?
Being normal to me, is being able to accept myself as I am in totality. It is being able to accept myself as our maker has made me- including all the trails, challenges, and joys of my life. Seen and unseen; It is being able to accept what happened to me when I was only 5 months old. And, it is being able to see the whole of me despite what others may think. Which really is none of my business at all!
My business is to continue to carry on- it is to continue to be the best person I can be no matter what. Normal to me, is learning about myself, and reaching beyond in all area's of my life- mentally, physically, and spiritually- It is truly being able to see how my maker wanted me, to rise above these challenges, that have not only confronted my spirit, but have shown me who I am, even with my Cerebral Palsy, and a learning disability, and what I could become, achieve, contribute to the world, and rise above...
Being normal could also be what we think others want us to be. That we don't fit in or act or speak, or dress a certain way. Normal to one person is not normal to another, as we all see things in our lives, in a different perspective and light. We all have thoughts, and feelings, and issues, that we deal with on all different levels. However, if we could not lay labels, barriers, and stigmas on others human beings, to make them feel ugly, inferior, or desperate inside, because of our own belief system, or what society make us to believe- we would find out that we are ALL normal
Everyone is different and unique in their own birthright. You can see some disabilities while not others. Who is it then, for us to judge another person, or say what is normal
Labels: Cerebral Palsy, learning
Integrity
I continue to think to myself... why is it that I am so pure, honest, direct, and sincere? Why is it that others can't see that within me. Why is it they cannot acknowledge this or praise me for this or help me in the little way I may need helping? I ask myself... why can't people handle my honesty?; Is it because the world is not that honest, and they are ONLY out for their own selfish self?
Tell me! Are we living in such a world where people only look out for their own good and do not really care about others, or helping others?
I hate to say this, but I do think so! Yes, there are a handful of us out there... who are willing to help others go the distance, and they open amazing doors for others... they give and share of themselves genuinely and completely. But that is not the norm in our Competitive world and society today. My belief has always been to help the next guy. So together we could live in peace and harmony and make a difference together. There is Always room for all of us to have a piece of the pie. There is always room to be happy and spread that happiness to others! But only if WE are willing to share these gifts with others and do not let our greed, our power, our suave abilities or ego's to get in the way of our usefulness.
I do not believe in using other's just to get ahead ourselves. I believe in all good things. I believe in the integrity of helping people to feel good about themselves I believe in the whole person, and in healing one's souls I believe in helping others feel good and worthy of themselves, body, mind, spirit and in heir thoughts and ideas. I believe in genuine kindness- and, I believe in living together in peace and harmony- walking side by side without judgment or fear.
Our world has to much hate and anger in it. It would be so sweet if we could dissolve it like an air balloon letting go of its fuel never to be ever again. I think if we all could contributed just a little, tiny bit every day, in some way, to bring a kind word or deed to others. Our world would start to mend and heal. We would not live in the chaotic way which we do. This act of sharing kindness to others would make a big difference in our society, and contribute to own integrity as a person, a state, a nation, and a universe all around.
My integrity has lasted me all my life, and it will continue, as I am going to keep it for ever more!
Labels: Cerebral Palsy, learning
Cab Direct E7 Taxi With Dedicated Wheelchair Access On Show At Liverpool Taxi & Private Hire Exhibition
Taxi drivers visiting the exhibition will be able to see the E7 up close this week and find out the many other benefits this vehicle has to offer over a conventional TX4 black cab. A lower purchase price, superior fuel economy, longer service intervals and modern design are just some of its key attributes.

The decision was taken to support the event, despite the fact that Liverpool City Councilâs licensing committee has refused to grant the E7 a Hackney Carriage licence.
BBC TV Northwest highlighted the case being brought against the Councilâs licensing committee by wheelchair user Alma Lunt and Cab Direct over their decision to snub the E7. Disability groups representing thousands of wheelchair users say the E7 offers a far safer and more practical solution to that which currently exists.
The TV footage showed Mrs Lunt take journeys in a London-style black cab and then an E7, to highlight the major problems she faced. Mrs Lunt was securely strapped in to the back of the E7 while facing forward and wearing the correct three-point seatbelt, something not possible to achieve in a London-style black cab.
Liverpool City Council is being taken to the High Court by Mrs Lunt and Cab Direct over its taxi licensing policy. The Liverpool Wheelchair User Group is also supporting the judicial review test case.
Gerry Facenna, Chairman of Cab Direct said, âWe are delighted to have the opportunity to let Liverpool taxi drivers have the chance to find out for themselves the benefits a more modern and accessible cab offers. With regard to the licensing issue, weâre not seeking special treatment from Liverpool City Council, just a fair opportunity to offer a safer and more convenient solution to the local disabled community. Weâre hoping common sense will prevail.â
Labels: Access, wheelchairs
Theatre takes to streets for Stockton International Riverside Festival

WANDER down Stockton High Street this week and you might bump into slippery slinkies, an oversized ghetto blaster, trampolining acrobats, hip hop dancers and break neck stiltwalking.

World class street theatre companies will deliver a range of performances throughout the five days of the Stockton International Riverside Festival, starting today.
Australian company Stalker brings Stiltbreak to Stockton and with it a fusion of breakdancing and hip hop style with power packed stilt performances at the weekend.
Fellow Aussies, Bedlam Oz, make a welcome return to the Festival with the unforgettable Slinkies, performing five different comical mini shows on Friday and Saturday.
Tomorrow the High Street will be transformed into a beach for Desert Island Discs by Artizani - a show full of gags, tightrope walking and buried treasure.
A caravan parked up on the High Street provides the perfect place to relax thanks to Impossible Theatre and their Chromavan, using miniature and innovative LED lighting technology to create a soothing light and colour experience. Catch them tomorrow.
World music, rock and jazz are also fused together in original compositions by French musicians Le Grosse Couture tomorrow, at 7pm.
Tonight Flying Dragon Circus kicks off the Festival in majestic style at 7.30pm at Trinity Gardens.
Meanwhile the Without Walls consortium is aiming to present and develop the work of the next generation of British performance groups working outdoors.
The passion of the tango gets an extra dimension thanks to extraordinary lifts provided by Wired Aerial Theatre who will perform on Church Road Plaza on Saturday and Sunday.
The Tavaziva Dance Company presents Beautiful People â a unique combination of contemporary and African dance styles. They perform on Stockton High Street on Friday and Saturday.
In the same location, Gulliverâs Boom Box by Company Fierce offers a funky and hilarious take on street dance styles since the 1970s.
For full details of times and venues for the Festival, including the Fringe Festival with headline acts Happy Mondays and Super Furry Animals, go to www.sirf.co.uk
Festival-goers are invited to upload their pictures at www.flickr.com/groups/sirf2008
Labels: Stockton-on-Tees
Stockton International Riverside Festival

With its unique form of theatre performed among the crowd, Close-Act is set to be one of the highlights of the festival, providing a show that aims to tap into viewers' dreams and nightmares. Beginning as an adventurous journey through space, Malaya (Sun, Aug 3, 10pm, High Street) is played out in a fantastical world populated by fire-breathers, stilt-walkers, marching percussionists and singers in hot air balloons.
Also famed for creative stage set-ups is Exos, which creates otherworldly performances through circus, dance and theatre. Using a dreamlike setting, its show, Suma (Wed, Jul 39 until Sat, Aug 2, 10pm, Sun 9pm), will transform Stockton's Parish Gardens into an ethereal landscape.
Metro-Boulot-Dodo, meanwhile, will be showcasing part of its outdoor installation project, Four Seasons. Each year the group creates a new piece of art reflecting the different stages in a person's life. Journeying from rebellion and recklessness to responsibility and mortality, Winter (Wed, Jul 30 until Sun, Aug 2, noon, Municipal Buildings car park) promises to be a chilly place where icicles and snow shakers reign supreme.
Wed, Jul 30 until Sun, Aug 3, various venues and locations across Stockton on Tees, times vary, free. Tel: 01642 525199. www.sirf.co.uk
Labels: Stockton-on-Tees
29 July 2008
Listen to a live interview of Brandon Ryan
Jim Sidelucki interviews Brandon Ryan about his book, The Emotional Struggle
Miller's tale of Paralympic success
As the Beijing Paralympics fast approaches, all of the Great Britain team are putting the final touches to their preparations and is the same story for Stephen Miller, who will be chasing yet another gold medal in the club throw.
The 28-year-old will be one of only two competitors on the GB team (javelin thrower Kenny Churchill is the other) who will be bidding for a fourth consecutive individual gold in the same event in Beijing.

Miller's event is contested by athletes with cerebral palsy who use a wheelchair. They sit and throw a wooden club (which looks like a skittle, but weighs almost 400g) backwards into the field of play.
The 28-year-old from Newcastle was born with a form of cerebral palsy which results in a lot of involuntary movement and his F32 category is the most severe cerebral palsy class at the Paralympics.
But he has enjoyed much success in the sport, making his Paralympic debut in 1996 in Atlanta, where he was the youngest member of the GB track and field team, and took gold.
He then went on to retain his title in Sydney and Athens and is the European and world champion and the world record holder.
He is also a noted discus thrower and will compete in both events in Beijing.
Away from the field, Miller has also been working on another major project and after two years of hard work, his autobiography is about to be released.
Entitled Paralympian: My Autobiography, it was launched at Newcastle's St James's Park on Thursday.
Fittingly for Miller, who is a Newcastle United fanatic, the forward to the book has been written by manager Kevin Keegan, who first met him many years ago and has followed his career closely ever since.
Keegan writes: "I know how hard it is to compete at the highest level, and it's no different in any sport.
"It takes dedication, courage and self-belief, and Stephen has those qualities in abundance.
"His story is truly unique and inspiring, and at his young age I'm sure he isn't done yet."
In the book, Miller describes how important it is for him to keep focused on the positives in his life.
"Everyone has things he or she can and can't do.
"When it boils down to it, the things I can't do are pretty boring and mundane - making a cup of tea, tying my shoelaces, cooking a meal, driving a car.
"Admittedly, it can get me down when I realise I probably won't ever be able to do a lot of these things, but not for long.
"Here's why: things could be worse.
"Things can always be worse. Life is life, a gift, a miracle. There will always be someone in the world worse off than you, and that's a good thought to keep in the back of your mind."
Now, as he works towards Beijing, Miller believes that these Games will be his toughest ever, but he insists he will be ready for the challenge.
After recovering from a hip injury, he recently threw a personal best at the Cerebral Palsy National Championships in Nottingham, beating his previous world record mark of 34.93m with a new best of 35.98.
Unfortunately the throw could not be ratified as a world record because it was not an international tournament but it gives him a boost as he gets set to take on his rivals in China.
And success in Beijing will mean another chapter can be added to his life story.
Labels: Cerebral Palsy, Sports
Celebrating 60 years of Paralympic sport
The Paralympic movement has come a long way between the first International Games at Stoke Mandeville, which began 60 years ago today, and the Paralympic Games, which start in Beijing on 6 September.
Developments are constantly being made on and off the playing fields and in the way the events are covered by the media.
Back in 1948, Sir Ludwig Guttmann, a neurologist who was working with World War II veterans with spinal injuries at Stoke Mandeville Hospital in Aylesbury, began using sport as a vital part of the rehabilitation programmes of his patients. These became known as the Stoke Mandeville Games.
A milestone event took place in July 1948, when Guttmann established a competition for patients with spinal injuries to coincide with the London Olympic Games. Sixteen paralysed British ex-servicemen and women took part in an archery competition.
Since then the "Parallel Olympics" have become the pinnacle of international competition for disabled athletes. The name derives from the Greek "para" ("beside" or "alongside") and refers to a competition held in parallel with the Olympic Games - no relation with paralysis or paraplegia was intended.
The first official Paralympics were held in Rome in 1960 and it has grown in strength since then.
At the end of August, the "Test Event" (as the Olympics are known in Paralympic circles) finishes and we can look ahead to the 13th Paralympics.
People often ask why the Paralympics are not scheduled before the Olympics.

In Athens four years ago and now in Beijing we have seen the answer - the host organisers clearly would have struggled for different reasons to ensure that the Paralympics would be ready in time.
I have been involved with disability sport and the Paralympic movement for many years and each Games creates a tremendous buzz and excitement in the build-up.
My first involvement came many years ago as an international wheelchair table tennis player.
Although ranked in the top three in the country for quite a few years and being able to compete at World and European Championships, selection for GB to participate in the Paralympics just eluded me.
The first time BBC Sport covered the Paralympics in depth was in 1980 when, along with producer Jeff Goddard and the legendary Welsh rugby player and broadcaster Cliff Morgan, I covered the Games in Arnhem.
After that it was time to concentrate on my business career within the BBC working across Drama, Sport, Finance HQ, Documentaries and back to Sport and it was not until Sydney in 2000 when I resumed Paralympic duties.
Although I was not in Sydney, with the time difference, there was a critical role to play in London to ensure that across radio and online our listeners were kept in touch with all the news and action from a tremendous Games for Team GB.
Athens proved to be a successful Paralympics, both in terms of GB medals and the BBC coverage. BBC Sport was later recognised with an award from the International Paralympic Committee as the best international broadcaster from the Games.
That led to me going out to China on behalf of the department to receive the award and experiencing for the first time the culture of China.
British Paralympic legend Dame Tanni Grey-Thompson and I spent some time wheeling around the streets of Beijing, and then there weren't many disabled people visible.
It will be interesting to see whether the attitudes of the Chinese people have changed in the past few years and I honestly hope that the real legacy of the Paralympics will see much better access and acceptance of disabled people throughout China.
One of the first benefits of the Games coming to China is improved access to two of the best known historic monuments.
Tourists with a disability from all over the world will now have much better access to Beijing's most famous Forbidden City and parts of the Great Wall following extensive renovations.
As we get nearer to the Games media interest has heightened and a real multimedia approach is driving us forward.
The catalyst this year was back in May with the Paralympic World Cup in Manchester, of which BBC Sport transmitted two hours of live coverage.
There has been real interest across all outlets with international stories surrounding South Africans Oscar Pistorius and Natalie Du Toit bringing Paralympic sport to the forefront of the sporting news.
With some prompting, programmes across the BBC are ensuring that they are covering both Olympic and Paralympic stories in unison.
I am sure the Beijing Paralympics will be a successful but very challenging Games for broadcasters, but it is one that we are looking forward to.
28 July 2008
Keep on Keeping on
Yes, I can't deny the fact that after all these years I'd like to be known or recognized, or be invited as a guest speaker and get reimbursed for going out and delivering these words of peals to all those that want to hear me. I also want to be known for making a huge difference and contribution to other peopleâs lives.
Oh how I want to give back to the world and to others with disabilities to let them know that they are not alone! It is so vital and important to others and to myself to do this- it sings out to me in melodic form and lyrics, and it brings to mind one of Beethoven's musical pieces. It tells me over and over again that all of this is so very worth it! All the challenges, all the joys, and all the time in my life I have spent making something of myself.
When my girlfriend wrote these words, I could feel my heart skip a beat, and I knew deep down inside that even if I don't become a well known keynote speaker, and if I don't get paid for what I do, that all of my actions here on earth will not go in vain. I know that what I do comes directly from my heart. It come with a sincerity and a goodness within the deeps of my being, to help all that want and ask for it- and It comes from the love inside of me!
Still, after all these years of hard work, effort, determination and action, these kind words are my payment. They are my source of inspiration and reward they are my hope, and my faith They are my bread and butter
My hope is that someday an angel, a miracle, an intervention will come to pass for me Someone will hear my prayer some how somewhere in this all encompassing, competitive, world of ours, some kind soul will recognize me and hear my plea- and my word- and they too will know- they will have been touched- and some-how with their clout they will help me over my bump and hurdle. My continuous hope, and prayer is that this kind someone will find the goodness in their hearts to reach out to me, to make a difference, in not only my life, and help me to open the doors, but ultimately, to help others even more-
I have spent my entire life doing this work that I do for little or nothing and only for love in return.
I'd like people to know that I need to do this to live and breathe; It is the air that keeps me going- It is who I am, I need people to know that this is my lifeline- and that I need to do this for not only the good of all man-kind but for my inner-self- it is to be a productive person in society- being able to be independent, self-reliant, self-sustainable by providing and putting my own bread and butter on my own table...
I need the world to know that even people with Cerebral Palsy and a learning disability can succeed- and that they can earn and make a living at something they love to do- I need them to know that our bodies may have impairments but our minds have the same needs, wants and desires, as all people despite what professionals and experts; make us; and other to believe. We can work especially at something we are good at doing! I need to share this with all my readers, and the world! There is wayyyyyyyyyyy more to living than being labelled, put down negatively, or abused by others who call themselves professionals or bosses There is far more for us to do than just work in a workshop setting, or sit at home watching t.v. or sitting on the computer to pass the time of day-
I need all you readers out there to know this, I need you to know that I/we have desires just like everyone else does. I need you all to know that I don't want to be taken for grated anymore either. For once in my life, I'd like to make it on my own- living in society- working for a living, and being content with-in my own being. I'd like everyone else to know that I/all those with disabilities have desires and talents. we can succeed if given a chance and the opportunity to do so- Time and again I have proved myself- I would like not to be taken for granted anymore- or settle for less than what I am worthy of- just because I have a disability doesn't mean you can step on and over us like dish rags- Yes this anger's me- it anger's me very much!
I really need to let you, my readers, know, that I want to make a difference in my own life by making my OWN livelihood, doesn't matter if I am married or not, I need to feel my own dependency- on and for myself- doing it my way... I want people to know and understand that I have ALWAY paid my own way for everything I have done in my lifetime- I have not begged or pleaded for donation of such for anything like some I've come in contact with- I can do anything I put my mind towards doing, and I have proved this fact through my actions time and again-
For once in my life I would like people to know and understand that yes, I do, do this Always from the goodness and unconditional love of my heart; but that's where it stops now. That's the bottom line here and now. I need others to know that I too need to be compensated for my actions and talents and first hand knowledge now- and until people recognize this- and take me seriously I will keep knocking until opportunity knocks
Until then, I need to keep hearing these words and I need to keep reminding myself to be very grateful-these words are the precious words that are my reward and payment
They are sweet as sweet can be And they reaffirm my goodness. They reaffirm my abilities, and they are a direct result to all the action I have taken throughout my entire life to make me who and what I am today. Over and over again when someone says something like this to me, this quiet warm glow comes over me. It make me radiate peace and harmony and it bathes my being in joy and happiness.
This voice reminds me to not take things for granted and to be grateful for every experience in my life that I have had to ever go through. It also tells me how far I have come, and where I am going- this inner-voice reverberates revealing gentle messages telling me why I do this and why I keep on keeping on It reaffirms to me how it must be, and why where-ever I am today it's where I'm suppose to be! Because I would be somewhere else if it were meant to be!
And thus, it makes me feel quiet inside knowing that someone else recognized my goodness and took the time to tell me who I truly am
Labels: Cerebral Palsy, learning
I am Only One Person
I am only one person, but it would be so nice to see people giving of themselves freely and unconditionally in a genuine way, or to see acts of kindness shared more often. I am only one person in this world we live in, and I will continue to make a difference in man kinds life in which ever way I can.
What Can I Do
If people would learn to take our word seriously, that would be such a blessing! Not only for all the millions and millions of individuals, but to get real, honest feedback from people who have paid the price mentally, emotionally, or physically, instead of thoughts who have never experienced having a challenge like this at all.
This would be a sincere humbling; if organizations, companies, our government, legislation, and leaders would take a positive step forward to hear our voices and put us on committee's and councils to change the way things are now... It would be a gift to all society and man kind if we were heard and truly listened to.
It would be even sweeter if we were compensated financially for our knowledge and really taken seriously. I personally would fight the good fight to bring all kinds of change to make a huge difference and impact for others as I have done for myself First I would stop categorizing us with people of down syndrome, mental retardation, ADD and so forth. I would also find a much better word to describe us. I would not use degrading, heart-wrenching titles; and labels such as: developmentally delayed or disabled.
I would do all I could to first de-signify people who never chose to be disabled in the first place, or to be labeled. I would start by finding real human ways and approaches to treating us with dignity and respect.
Labels: dignity, Disability, Down syndrome
Music in Mind and Body
Not only by listing to the sounds and rhythm's of each music, and melody presented to me, but through share willingness and determination to execute these steps and techniques, accurately, even though my body had a physical impairment and challenge of Cerebral Palsy, did I, or was I able to weep and see not only me developing my abilities, but conquering the challenges before me.
These daily and weekly lesson's brought to my body, mind, and soul something I have carried with me all these years later. It all began way back when. But before anyone knew what positive affects and effect's it would have on a persons spirit and life, let alone a person with a physical disability or learning disability - I knew the benefits it gave me.
I know how music, and dance have straighten my body, brought peace to my heart, and helped me to develop my coordination and so many other things the experts talk about today.
I am only me. I may not have financially been able to conquer my education, or get or be given a degree, because of some knowledgeable person who tried to dictate what they wanted for my life. But I have soared, attained, and accomplished goals in my life, without this piece of paper; they call a degree and I am an expert in my own right.
I know more through personal experience than most book learned people;. I know first hand how music and dance have helped me. It has not only been physically, but it helped me with my learning and with my thought processes as well.
Labels: Cerebral Palsy, Education
27 July 2008
Never Stop's
Getting Around A System That Doesn't Work
Our genuine desires as human beings, to led happy, productive lives is intentionality disregarded as they fail to consider our expression of success and happiness. We are never really taken into real consideration. Even if we have some kind of challenge, as a disabled person, our desires to attain our goals or degrees, aught to be recognized and respected. Even if it is just going into work. It would be a joy to have a say so in our destination which society pays no attention or heed to.
This infuriates me to no end, as time, and time, and time again, I have strived, and attempted, and fought for every ounce and every bloody achievement that I have made today. These years of fighting with a system that does not see us as worthy to listen to, have indeed left their scars.
If only our struggles were given the same importance as other suppressed people, it would make life a whole lot easier. Instead, precious years have been frittered and thrown away, down right wasted, trying to get around artificial barrier's of the worst kind. My dear friends, this struggle is often hidden from people who do not experience it directly, but is no less real.
If I can bring this idea into your heart's and minds then my life long work and struggle has been worth the while.
What we go though as Disabled People
We too often are looked down upon rather than regarded as someone with importance, worth, or value and worthy of attention. We are plighted beyond words because it is easier to ignore our abilities to focus details. Time and time again I have been aware of others viewing me as a helpless, victim, and not the intelligent, confident person, that I am. We find acceptance from the public and professionals when we are cute little children, and are not a threat to society. But we grow up, have a mind of our own, and desires to fill, that acceptance immediately fades away into nothingness!
Labels: Cerebral Palsy, learning
Outcome
Labels: Cerebral Palsy, learning
Determined
Learn
have been told...in strength there is numbers. How can we, ourselves, begin a movement towards bettering life and the world around us! Tell me?
Labels: learning
Cleansing of the Heart & Soul
My Visit
I have been reading and learning all kinds of new things. I am also more in tune and am listening even more closely to my life's note, issues, and events, as I let go of my past one at a time. No more of hanging on to certain ideas and old thoughts that hurt and wounded me Gone they are! As I believe in the birthright to live, love, renew my inner soul's intentions, rejuvenate my spirit and physical body, along with its simple beauties. I truly want to see and recognize my own glory, as I rebuild my physical body to health.
Labels: Acupuncture, learning
Interesting Article
by Deborah Pipas
Why me? Has your disabled family member ever ask you this question? I have been asked several times and as much as I hate to admit it I still donât have an answer. As I go through this maze I find a lot of unanswered questions and sometimes answers and no questions.
I have talked with family members and disabled persons alike that have told me the same thing over and over âno one else in the family has suffered like thisâ. Where did this disability come from and why has it happened to me/us? Of course I donât have the answers I really donât think anyone does. There are genetic reasons that can skip generations as well as a whole list of additional reasons we hear from doctors and healthcare specialist. It still doesnât make the family or the disabled person feel any better about the situation. Sometimes we must find a way to move past the why me part and get on with the what do we do now part.
Once a family member has been diagnosed with a life changing disability we must search for ways to move forward sometimes accepting that it is what it is. Things donât have to stop there and usually they donât. The family finds a way to adjust but how do we help the disabled person adjust? Unfortunately it takes a lot of work on the part of the family, healthcare workers, caregivers and last but not least the disabled person.
Depending on the disability and the age of the patient often we need to just sit down with the them and find out what hopes and dreams they have for the future. We need to be honest with them about their limitations and be prepared to help them find the resources that are available. Encouragement is huge and sometimes very difficult to offer when we are discouraged ourselves.
There is a lot of help available in this day and time. Having access to the internet can put us in touch with others suffering the same type of disability. There are family and individual support groups, books written on just about every disability known to man. The list of resources is infinite.
What do you do when you just donât know what to do to help your disabled loved one get past the why me stage? Reach out to others who are experiencing the same trials, errors, set-backs, hopes, dreams and successes. Perhaps the disability is not the same but many times the emotions involved are feelings to which we can relate.
The most important thing is to help the disabled person realize that just because they are limited in some way doesnât mean that they cannot enjoy life. If your loved one feels more comfortable around others that suffer the same symptoms locate local groups that meet. If they enjoy reading and are open to ideas regarding how others have learned to cope with their limitations and learned to enjoy life then help them locate books. Your local library is a wonderful resource and many are now online so that you can locate and reserve books you or your disabled loved one would enjoy reading.
Spend time with them if they are severely disabled sometimes just holding their hand or combing their hair will make them feel better. Think about things that you would want someone to help you to accomplish if you were in their place.
To the family and caregivers I encourage you to find ways to take time off and do something nice for yourself. Perhaps go see a comedy with a friend or plan a night out with your spouse or significant other. Often we just need a small break from lifeâs reality to rejuvenate our soul and spirit.
If your disabled loved one lives in a care facility outside the home perhaps you could visit a little more often, drop them a note or mail a small thoughtful gift when you canât visit as often as you would like.
The most important thing is to try to find things that bring joy and happiness to both you and your disabled loved one. Do something that will bring a smile to their face or light up their eyes. Let them know that you really care about them and that everything you do for them is because you love them.
Labels: Access
26 July 2008
Journey
One of the on-going challenges I've been experiencing has physically gone on for the last 35 years. I don't like to talk about this much, because I've worked on it for so long I am hear to tell you that I am still alive and ticking and getting to the root cause. I have learned to cope and accept my allergies to all the different food I have. I will continue on, because I must! I will seek more, and research more, and reach out to those Doctors who I think might be able to help further! You see, in the last 5 years my body has been reacting violently to foods and not getting the nutrient to what I eat.
I have been working with the best Naturopathic Doctor's around. And Monday, I will be going to see a new Homeopathic Doctor. These challenges have been far more heart wrenching than my Cerebral Palsy and Learning Disability. When I begin to think about this for a minute, it is very painful, it is more painful, and up there emotionally with fighting for my life and my education with my Civil Rights Case, or trying to prove to the world that I am a capable person in doing anything I put my mind towards doing!
But I will survive and get through this just like everything else! I really will!
Labels: Cerebral Palsy, Education
My Personal Battle!
The truth is, that ever since I can remember, I have been passionate about getting my life, together, whatever that is lol, and giving more that 150 percent to it, in everything I do. I don't know any other way. Whether its dealing with a physical therapy issue, a learning issue, an inclusion issue, an employment issue, what ever the issue was, I have always, always walked the line! No matter what I have had to deal with, I have always spoken the truth, and given everyone my all. Whether they would expect it or not. I paid the consequences too!
More times than not, the people I confronted, could not handle the truth. Yet I was canned in the way they decided. Most people could not, and did not know how to cope with the issue or situation at hand or with me personally! They liked to tastefully turn the tables, put me on the defensive, and make me out to be the bad guy! And I, I only want to see good for the world, I only want peace and harmony for others, and I only want to share with the world if I could do it, so could you! I don't want favours, and charity! I don't want to be treated any differently just because I have a physical disability or a learning disability. I may need some help. And I will ask, if I do! As there is absolutely nothing wrong in asking for those accommodations and in turn, receiving them, fulfilled. And giving it your all! There is nothing wrong in having the same desires as others! We are all human! Aren't we? Why then should we be looked at any differently?
I do not think society ever dealt with a human being just like me before! A free spirit, a rebel with a cause, a person who has hope, dreams and desires, and whatâs to help others not have to go through what I had to go through! And to see those dreams accomplished. I am a person who is willing to go the extra mile, who is willing to take on the system, to not only see equality for herself, but equity for others! I want to see and bare witness to fairness. I want to bare witness to justice being made for my kind. It doesn't matter to me what your disability is lets learn to help each other and work in unison. One for all,... and... all for one This way all of us can have an opportunity and chance to have our wants, needs, and dreams met.
We are not animals to be lock in cages. We are not extra ammunition or surplus to be shot rounds at. And, we are not criminals! We are human beings desiring the same things in life that NORMAL; people have a chance at daily. So why can't we! We do not deserve this kind of treatment. We are people who want to succeed in our lives We want to see our hard deserved action recognized We want our words to be taken seriously, and we to want to be praised and validated- we want other to recognize our achievement without being locked out of the mainstream of life! We want our lives to have meaning too!
We don't want to just sit at home day in or day out, and stare at the four walls because we were blocked, conveniently, from earning a living, or getting a degree that we could have gotten if those professionals who call themselves professionals did not stand in our way, or label us, or made a unsound ruling and judgment just because we are shrouded with an imperfect body, or mind... this does not give anybody the right to look down upon us, or judge us.
-----
Labels: Employment
Sounds of Healing: Music Therapy
To soften rocks, or bend a knotted oak."
-William Congreve
Have you ever felt so overwhelmed by a mellifluous strain that tears have streamed down your eyes in a wave of catharsis? Or has a soulful melody opened the flood gates of old memories, to transport you back in time to a beautiful reverie? How often have you rocked your blues away listening to feet tapping music?
From infants to the infirm, musicâs appeal is universal and nonpareil, wafting its way to the heart!
Dan Ellsey, a 33 year old cerebral palsy patient couldnât agree with this more, for him music has become a novel way of expression. On his specially designed computer program called hyper score, Ellsey breaks into a composition to convey the innermost feelings in his heart. Just like Ellsey and for a many others, the repertoire of musical notes has helped convey a myriad of emotions, which words often fail to do.
The quintessence of communication, sound, is evident right from the instant of birth. A babyâs cry is endowed with a certain rhythm, pitch, intensity and purpose, to attract an appropriate response from the parents.
Our hearts beat to an internal rhythm. It is further believed that sounds influence the complete human energy system, increasing our response to them, which is perhaps one good reason why we are also called âmusical beingsâ.
Music Therapy is "the prescribed use of music by a qualified person to effect positive changes in the psychological, physical, cognitive, or social functioning of individuals with health or educational problems" (American Music Therapy Association 1999).
Sound of Music in Medicine
The connection between music and healing dates back to the time of Plato and Aristotle when vibrations of sounds were employed to alleviate physical pain and relieve psychosomatic disorders.
Music therapy rose to prominence during World War I and World War II; at that time musicians were employed to render appropriate musical notes to alleviate mental trauma and physical pain to veterans of war. The response was so good that many hospitals began to employ musicians.
With the increasing popularity of music in medicine, the need for formal training in music therapy was felt. Thus, the first music therapy degree program was created in 1944 in Michigan State University. Many numbers of colleges have grown since then which enable degree programs in music therapy.
During the 1960âs, in Scandinavia and Britain, musical vibrations were used to heal. Popularly called as music baths, clients in Norway were bathed in sound and music.
The more recent form of music therapy called as vibroacoustic therapy, is an extension of music baths, where sound is transferred directly from the air into the body of the patient. Certain medical conditions like cerebral palsy, asthma, constipation, abdominal pain, and sleeplessness have responded well to the treatment.
Music therapy involves the methodical application of music by a qualified music therapist to treat psychological and physiological aspects of illnesses. It also lends itself as a diagnostic tool in locating developmental delays and psychological issues in children. Further, music therapy supports other forms of medical treatment.
Broadly music therapy is used to alleviate pain, control stress, build communication, assist in physical rehabilitation, enhance memory, and aid expression. The services of music therapistsâ are sought in hospitals, mental health departmentsâ nursing homes, psychiatric rehabilitation centers, and schools.
Music learning is known to give an impetus to communication skills, so the services of music therapists are sought in schools for helping special learners. It also helps people with mental health problems understand their feelings better, and leads to positive changes in their mood, enabling better control over their lives.
Music also provides the background support for physical exercise and takes away boredom while performing routine chores. It can be employed for reducing stress even among healthy people.
Music therapists initially make an assessment of the person against a set of parameters which includes â cognitive skills, physical health, emotional health, and communicative abilities. The therapists tailor music to meet the specific health needs of the individuals, which also involves periodical evaluation and follow up.
Body Tunes into Melody
Wondered why a baby sleeps peacefully hearing a lullaby?
Human behavior is profoundly influenced by music, according to the book âBiomedical Foundations of Music as Therapyâ by Dale B. Taylor. According to Dale, the brain is absolutely captivated by music and this positive influence is transmitted to the rest of the body.
"Musicophiliaâ, a book by neurologist Dr. Oliver Sacks, tries to delve into a deeper understanding of the brainâs responses to music. Offering an explanation he says, âItâs unclear why humans are so uniquely sensitive to music - certainly music shares many features with spoken language, and our brains are particularly developed to process the rapid tones and segments of sound that are common to both."
It is said that the moment we hear a tune, deep breathing increases, which is a good way to beat stress. Music also reduces heart rate, and regulates the body temperature appropriate for relaxation to set in. Further, the body secretes more of serotonin, in response to music. This is perhaps why a lullaby calms the baby, soothing it to sleep.
Research Sings Paeans
"Music washes away from the soul the dust of everyday life." -Red Auerbach
The state of âhappinessâ while listening to a favorite number shows up in brain scans as evidence of positive response to music, report Scientists from the Montreal Neurological Institute. Appealing music is thought to titillate certain regions in the cortex of the brain, importantly regions associated with âthinkingâ. There have been many scientific studies that have enumerated the benefits of music therapy. Results of some of these are enlisted below:
âą A 2001 study conducted on burn patients, whose burns required to be periodically scraped to lessen the formation of dead tissue, found that music therapy helped alleviate extreme pain occurring during the procedure.
âą A 2007 endeavor by Cochrane Collaboration, studied the data from 51 âpainâ studies and it showed that music helped reduce pain and the requirement for narcotic drugs.
âą Cochrane Collaboration also found the immense benefits of music therapy in the improvement of certain mental conditions, for instance schizophrenia.
âą Premature infants who listened to lullabies were found to be quick in learning the art of âsuckingâ which helped them gain weight faster, compared to preemies not exposed to the benefits of music therapy.
âą Hospitalized children suffering cancer showed a boost in their immune system when they sang, played and listened to music as compared to children who were not exposed to music therapy according to Deforia Lane, director of music therapy at the Ireland Cancer Center in Cleveland. Stroke patients and music therapy for regaining speech: Musicâs impact on the brain is certain, according to Dr. Gottfried Schlaug, chief of the Cerebrovascular Disorder Division and Stroke-Recovery Laboratory at Beth Israel Deaconess Medical Center. Dr. Schlaug found those suffering a stroke on the left side of the brain, with their speech centers damaged, responded very well to âmelodic intonation therapy." Using two tones to sing and communicate this form of music therapy helped patients graduate into actual speech much faster than others.
âą Paralysis and Music Therapy to regain gait: Music therapy has helped patients suffering partial paralysis to regain their gait, according to research from the Center for Biomedical Research in Music at Colorado State University. Walking to the rhythms of music, patients retrain to walk much faster than patients who were not exposed to music therapy for rehabilitation.
âą Autistic children and music therapy: To understand how the autistic brain processes music, a new study is proposed to be conducted by Istvan Molnar-Szakacs, a researcher at the UCLA Tennenbaum Centre for the Biology of Creativity. Explaining the background of the study, Istvan Molnar-Szakacs said, "Music has long been known to touch autistic children. Studies from the early days of autism research have already shown us that music provokes engagement and interest in kids with ASD. More recently, such things as musical memory and pitch abilities in children with ASD have been found to be as good as or better than in typically developing children."
Healing is undoubtedly a divine manifestation of music. From âtouching a chordâ to âtouching a cureâ the world of medicine is swaying to the boundless repertoire of music. âWithout music, life is a journey through a desertâ, Pat Conroy said, and medicine agrees to it wholeheartedly!
Labels: back pain, cancer, Cerebral Palsy, Music
For all your therapy needs
Our Multifunctional Therapy Unit is the tool you need to provide the ultimate therapy while preventing possible injuries to the treating therapist AND saving your company thousands of dollars!Our Multifunctional Therapy Unit has been used in European countries for over 30 years
NEUROSUIT

Children and Adults in need of a catalyst in their physical therapy program....THIS is the tool that can get you there. The ONLY suit that treats the entire body, including the arms. NeuroSuit is a comfortable rehabiliation suit intereconnected by resistive bungees that help bring the body into correct alignment allowing you to exercise and learn new correct patterns of movement.
Magnet Therapy
Labels: Exercise
Find all your mobility aids here
Welcome to DisabledAccessories.com
DisabledAccessories.com was originally set-up by Glyn Rosser in 2003. Glyn, who is himself disabled following a road traffic accident in November 1992, was appalled at the difficulty in obtaining, and the cost of living aids and equipment in the UK, and was moved to set up disabledaccessories.com in response to this.
After 3 years of running the business, watching it grow and expand, Glyn sold DisabledAccessories.com to Foot Shop Ltd in September 2006.
Foot Shop, who are an established multi-channel retail company based in Street, Somerset, will continue to focus the business on the same core principles which Glyn based the business on which are;
- To provide a vast range of goods, including the low value items that are not generally profitable, but are very much needed.
- To create an image (not text) based shop for ease of use that does not require the customer to be able to read.
- And finally price. Disabledaccessories.com will always be a discount warehouse, with exceptionally low prices. We challenge you to compare us to anybody.
Active Mobility Centre Ltd
My name is Nigel Arnison and in 1989 I suffered a spinal cord injury C6/7 due to a car accident. After spending eight months at Hexham spinal injuries unit recovering from my injuries where I found the staff to have been excellent I was discharged into the big wide world again, and it was then that I quickly realised how much my life had changed.
One of the hardest things that I had to come to terms with was losing my independence. You may have the most caring family and friends in the world who would not hesitate to help you !......But having to ask for help was a bitter pill to swallow. I soon discovered that there were items available to make life easier but it was not easy to obtain them. It was due to these frustrations that the Active Mobility Centre was born.
The Great British Mobility Group - Great value rise and recline chairs, beds and baths with quality and service that is second to none
At The Great British Mobility Group we pride ourselves on offering a huge choice of high quality, single, twin and three motor, rise and recline chairs, adjustable beds, bath lifts and scooters at great value, along with a service that we believe is second to none. All chairs and beds are manufactured in Great Britain from high quality materials and conform to all regulatory requirements.
Labels: Access
North East Equality in Sport Conference - The Time is Now
Labels: Sports
25 July 2008
Caring for carers requires flexibility at work
With an estimated one in seven UK employees having caring responsibilities outside work, the impact of a recent judgment by the European Court of Justice (ECJ) is set to be hugely significant. It will force employers to re-examine and broaden the reach of their equal opportunities and flexible working policies.
According to recent government figures, only 7% of people realise carers have the right to request flexible working. However, those caring for disabled children have had the right to request flexible working arrangements for a number of years and this was extended to carers of adults from April 2007. As a result, a new government-led awareness campaign about the rights of carers will be launched this year in a bid to avoid similar situations, such as those scrutinised at the recent ECJ trial.
"Only 7% of people realise carers have the right to request flexible working."
The case in question was brought by Sharon Coleman, primary care-giver for her disabled son, who requires specialised care. She accepted voluntary redundancy from her employer and subsequently lodged a disability discrimination claim alleging she was treated less favourably because she had to care for her son.
She was reportedly told she was not allowed to return to work following maternity leave, denied the flexibility of hours, and suffered abusive and insulting comments about both her and her son. Ms Coleman faced difficulties due to the wording of the Disability Discrimination Act 1995 (DDA), which says a person can only make a claim if they have been treated in a discriminatory manner because of their own disability.
However, the DDA, as with all UK discrimination legislation, is based on a European directive. It states discrimination should be prohibited if it is on the grounds of disability, rather than the employee's own disability. Ms Coleman's case, therefore, highlighted how UK government has not properly implemented the European directive. Her argument has been successful, with the court ruling protection from disability discrimination should not be restricted to those who are themselves disabled, but will extend to individuals like Ms Coleman, who are caring for a disabled person.
Current legislation criticised
It comes as the current flexible working legislation has been criticised for lacking teeth as compensation can, in many cases, be limited to eight weeks pay capped at the statutory limit, currently ÂŁ330 per week. The possibility of bringing a tribunal claim, which results in a substantial pay-out, has opened up to more potential claimants if they can show the person they are caring for is disabled and they have been treated less favourably than colleagues, because of their responsibilities.
The Coleman judgment and the prospect of the awareness campaign means employers have work to do. Caring can place a huge strain on employees, both physically and mentally, so it's unsurprising that one in every five carers give up work to care full-time. It falls on management to review policies and practices to create a culture where the specific needs of carers can be met in the workplace without fear of reprisal. Case studies illustrating how flexible working has, or could potentially benefit an organisation is one way of doing this.
One in two members of the Institute of Directors recently surveyed indicated there was a noticeable impact on their bottom-line from implementing flexible working arrangements. All the measured effects of flexible working were found to be positive, including the impact on, among others, productivity, profitability, customer service and absenteeism.
"One in every five carers give up work to care full-time."
Policy is only one aspect, but this must be underpinned by training for line managers who are putting policies into practice. Training should not just focus on the mechanics of a flexible working request, but should consider the employee's responsibilities as a carer so the manager understands the employee's needs and can properly balance this with the needs of the organisation.
If individuals feel able to approach management about their responsibilities, it means the need for time out of the workplace can be planned, rather than coming in the form of unexpected absences. Support from larger employers can also come from in-house carer networking groups, whereas employers of all sizes can benefit from links with organisations such as Carers UK, which has recently set up a new membership forum called Employers for Carers.
Many carers want and, indeed, need to work. However, they are required to juggle two jobs, their paid employment and their caring responsibilities, both of which are rewarding and demanding in their own ways. The employer who provides a supportive environment in which both roles can co-exist is the employer most likely to reap its own rewards and avoid costly legal action.
Chris Phillips is a partner in the employment team at Maclay Murray & Spens LLP.
Labels: Balance, Carers, Employment
The Fight For What's Right
But I was belittled, made fun of, and ostracized, I have walked the line, gone the distance, and climbed hurtles that most might think are the unthinkable! I have stayed as positive and as strong as I could to survive and thrive amongst the rest! Some how, some way I had to and still have to make a difference in my life, to be the best person I can be, and give back to life and all man kind what I have learned...
If I have to fight the rest of my life to succeed, I will because there is no stopping, me!
Convenient Labeling
They have labels for everything now a days. When I was a child I was diagnosed as left side hemiplegic Cerebral Palsy, and years later a learning disability. I was never labeled anything else, not until the 70's 80's and 90's Besides being labeled, it is emotionally degrading and humiliating. I know I was labeled three different times
It was very humiliating, because I knew inside myself I wasn't a classification. I was a human being! I am a person!
Thinking about these words make me cringe inside! As I am sure it does to other people who have been put in the same predicament as I and were classified as something they really are not
How can each and every one of us do something to change what is going on in our world for the children of today? How can we stop this from continuing to happen? How can we make a difference.
I didn't like or ever agree, use, or consider myself any of those things that were harshly put upon me! I fought the system and won, but so many people don't
What do you think?
I have gone and done far more then what these counselors of mine thought of me and my ability that at all in my life
Labels: Cerebral Palsy, learning
Device Helps MS Patient Float Like A Butterfly
ATLANTA -- Two years after her multiple sclerosis make walking exhausting for her, Tiffany Vinson has found something that has given her back her mobility.
Vinson didn't know what to think two years ago when she began to need help walking the stairs. She learned she had multiple sclerosis, a disease of the nervous system that, in Tiffany's case, made walking a struggle.
Today, Tiffany Vinson is moving forward, and anxious to show the way to others. This is the story of a lady, and her family, and a new device, and a tattoo.
Even after Tiffany Vinson was told she had multiple sclerosis she was all about moving forward.
"What's the next step?" Tiffany wondered. "I didn't have a moment where I was depressed or anything of that nature. It's just like, 'Okay, how do I live? How do I get it moving, so that I can provide for my two boys and my husband?' "
She investigated a device made by Hanger Prosthetics and Orthotics called the Walk Aide.
"For a person with MS, say," said Roger Feldman of Hanger Prosthetics. "The brain is not sending the correct signal to the muscle and nerve to function correctly. And this device takes the place of the brain."
The device helps people who've had strokes, spinal cord injury, traumatic brain injury, cerebral palsy and multiple sclerosis. It's being used by Iraq and Afghanistan war veterans -- but it is not covered by insurance.
Tiffany's MS had partially paralyzed her left foot. With this device, she could walk normally.
To make sure the Walk Aide works best for the individual patient, first that patient takes a test walk and his or her gait is recorded on the device. It's then uploaded to a computer where clinicians tweak it and send it back to that device so that it'll work the most efficiently for that individual patient.
Tiffany is moving forward.
"It's been amazing" she said. "It's been God's greatest gift to me. I have been able to walk and even make a turn sometimes."
Now about the tattoo. Tiffany put it there to cover a bad burn she got as a child. The butterfly has two dots -- exactly where the Walk Aide is supposed to be attached.
Labels: Cerebral Palsy, multiple sclerosis
The Gift of Cerebral Palsy
I am 31. I have Diplegic Cerebral Palsy (this is my official diagnosos but i'm afraid that i disagree as both arms and legs are affected). My Mum had a placental abruption with 6 weeks to go and the hospital delayed delivery for some hours. Apparently i "died" for 5 minutes - well needless to say the good Lord was not ready for me just yet! I like to think that, if i haven't achieved it yet, there is a good reason why i have to stay here and do stuff, either that or pass on some good attitude towards having CP, maybe being able to inspire others.
I have had numerous surgeries (as im sure most of us have) most at Oswestry Orthpaedic Hospital, under a Cosultant called Mr. John Patrick (any of you recognise thise PLEASE let me know!) Most of them were very well done and recovery was good. However in 1988 it all went horribly wrong - i will put that in my next blog.
I am married to John, for 7 years and we are still madly in love, he is a very special man and a very very wonderful husband. He cares for me and dotes on me like ive never known anyone to do with anyone before. He reads me so well and knows just what to do to help. I didnt know such depth of love was possible - he is my entire life.
Labels: Cerebral Palsy
Upon Reflection
I know I was talking to my manager and we were discussing how busy we were and she was saying that recently she was getting hope and thinking wow how do we manage to cope with being so busy, and I said, I am not sure, but some how we do manage it, then she said that she was thinking of me one particular night and thinking why am I moaning just look at Susie she does it, she copes so if she can cope then the rest of us should, âyou are an example to us allâ I was quite touched by this and at first I didnât really think about it, but then during one of my reflective moments, I thought ah I have actually achieved one of my life goals in that one moment, what I mean is if I have moved and inspired someone to take a step back from life and see that no matter how hard it becomes there is always a light at the end of the tunnel, it proves that I have inspired someone to see that in life above all adversity, that you can take stock and carry on and find the solution to whatâs facing you, you just have to step back everyone and then and re group.
That is a major thing that I have learnt in my life, that ok when you have the confidence you motor like a train and run with it, but in actual fact when you run with it, do you start to loose what you are aiming for. Here is an example of what I mean, this week I have had a break from my Bowen therapy and I have had an intense session with my own Physio, to see how I was progressing. I am glad I had this session because I seem to of had a lot of changes happen to my whole body alignment and gait pattern, and therefore we had to assess the changes and make some changes to things. Anyway I have got some work to do with my gait and positioning as I have some rotation, it seems that I am rotating when walking from my trunk, which needs correcting.
During the session going back to my confidence when I really think about what I am doing I have a really strong control and can virtually stop the rotation but once I get confidence and start running off with it I go back to my old ways and loose the control a little, when we did some work in the bars I had 2 Physioâs with me and that was because my Physio wanted to get me to understand the difference in position because with me I have to actually be moved into that position and then passively moved through it for me to understand it. Now when I talk about understanding I donât mean when someone asks me to do something or asks a question and then says have I understood it, I mean for my brain to understand what is being asked to do eg is the brain allowing the movement signal to connect. Once this has happened you can physically see that my brain has connected it is quite an amazing thing to see, because I have gone from moving like I always have done, to moving in completely in a different way. This is why I have to regroup all the time so to speak so that I get the correct messages to allow me to move in a normal way, and allow me to achieve my fully potential.
Labels: Bowen Therapy, Employment
Hands-free wheelchair lets Murderball athletes focus on hitting each other

Anyone who's seen Murderball knows how serious wheelchair athletics can be, but it's always struck me as more than a little inefficient that the athletes need to use their hands to both play ball and steer their wheelchairs. Short of giving them extra arms, is there anything that can be done about this? A group of designers thinks so, creating this Balance Sport Wheelchair that turns according to which way the person leans, sort of like a Segway. Users presumably still have to push to get their speed up, but the steering's all done by shifting weight. And to stop, just lean back.
Ricky Biddle, Eric Larson and Ben Shao conceived the design, which can be customized to its owner, since paraplegics vary greatly in their mobility. Someone with very limited movement might adjust the brake and turning response so they're activated by even slight leans, while those with more mobility would probably prefer a greater range. Looks like a great idea to us, but if there are any disabled readers out there, we'd love to know your thoughts.
24 July 2008
My second scan
As my second ultrasound scan got underway, I noticed my obstetrician was really concentrating on the images showing on a monitor. She was moving the scan probe all over my tummy with a curious expression on her face. I begun to feel nervous and uneasy, thinking something terrible was wrong. When I am nervous, I begin to have a lot of involuntary shaky movements. I asked if anything was wrong, and was finally told that I was expecting Triplets. One Embryo had been hiding behind the other two. This was yet another bombshell which shocked me to the core. My obstetrician now voiced major concerns about me carrying triplets. She informed me I would need to be referred to a Professor of Foetal Medicine, for examination to see what his medical opinion was. She discussed with me, that he may advise me to reduce the pregnancy by removing an embryo, leaving two remaining. Taking in all this new information was almost impossible. Physically I was experiencing an increase in shaky movements, the more I tried to relax, the more tense I became in every muscle. Mentally, I was fearing my tension spasms would harm my babies, and for the first time, began to have feelings of not being quite in control with what was happening to me.
My appointment to see the professor was arranged very quickly, the very next day in fact. Upon meeting him for the first time, he came across very friendly and down to earth. But I felt very nervous and worried. The Professor was well known in his profession, as he was involved in the pioneering of operating on a foetus while still in the womb. I was examined by the Professor and a couple of his colleagues. They spent some time studying ultrasound images. I was becoming increasingly anxious. The Professor, approached the bed where I was laying, with a serious look on his face. He spoke in a matter-of-fact manner, telling me I would not be able to carry three babies. He said, the space between my pelvis and breast bone was very small, and if I carried all three babies, they would be born dead or disabled, and my heart and lungs could be pushed out of place as the pregnancy progressed. At this point I was feeling devastated, and crying uncontrollably. My involuntary movements went from moderate to severe. The Professor's face, took on an expression of contempt an disdain. With me feeling and looking wretched, he announced it may be best to terminate the entire triplet pregnancy altogether. Hearing this, I voiced that I must try to at least carry one baby. He then asked each person in the room their opinion. Everyone present adhered to the Professor's evaluation of the situation, except my obstetrician. My obstetrician, god bless her, said 'woman with Cerebral Palsy are known to have babies'. It was then decided I would undergo an embryo reduction procedure to reduce the pregnancy from three to one.
The terminations would be carried out early the next morning. On the way home in the car, I felt very alone and isolated, as on top of everything, my relationship with my boyfriend had broken down. No-one had asked me, what I thought about the terminations, how I was feeling or anything. As soon as I got home, I felt terrible, trapped in something out of my control. The discussion at hospital had been in the context, here is a woman with CP presenting a triplet pregnancy, deal with it quickly. No debate on any other course of action. There was also never any mention of how I was feeling emotionally or otherwise. I had always been against abortion, yet here was I, bereaved at the thought of having two babies killed. In utter desperation, I telephoned the College of obstetricians and asked if there was an obstetrician anywhere in the UK who specialised in pregnancy and disabled woman. I was urgently seeking a second opinion. There is not one Obstetrician in the UK who has extensive knowledge on disability and pregnancy.
Embryo reduction, is a procedure first used when IVF treatment produces multiple pregnancies. The procedure is performed by holding an ultrasound transducer on the patients belly; injecting a needle and manoeuvring it into a position near the fatal heart; and drawing out the metal rod at the core of the needle and replacing it with the vial of potassium chloride that stops the fatal heart. The dead foetuses gradually dissolve and reabsorb into the bloodstream over a three month or so period.
The next morning I felt completely empty and saddened by what was going to happen. On arrival at the hospital I was shown into a medical room where nurses were busy making preparations. As I was helped onto the bed, my legs felt like jelly. Not much was said either. The Professor entered the room with an air of arrogance. During the procedure I felt pain. I was also shaking quite a bit, which the Professor frowned upon and almost lost his patience with me. I caught a glimpse of the monitor and saw the needle inject the babies hearts causing them to stop beating. My heart sank further. When it was all over, the Professor stood up, and said 'two dead, one alive', and left the room. Another sad car journey home, two babies less and the remaining one under threatened miscarriage.
The remaining embryo was the largest of the triplets, so had a good chance of survival. A couple of weeks after the two terminations, I began to feel a bit calmer about the baby I was carrying. Reaching the first trimester (3 month period), was a milestone for me. I was now three months pregnant, and felt quite well. I looked forward to my ante-natal appointments, to see how the baby was progressing. My obstetrician always assured me everything was going well. I was scanned more frequently than usual, as they had to check the other two embryos were dissolving. It was so comforting seeing the baby growing inside me. During scans, measurements were taken, which showed my baby was developing normally.
My growing bump
As the weeks passed I noticed my tummy expanding. I started to rub moisturiser on my tummy each day to avoid stretch marks. At the time I became pregnant, I had been studying a diploma course on counselling. To study, I would sit at my desk most of they day typing. At around 6 months pregnant, I begun to feel very uncomfortable sitting so upright in my wheelchair all the time. I begun to get some pain in the pit of stomach, and the only way to relieve the discomfort was to lay down on my bed. One day I was in more pain than usual and went to the hospital. After a scan, I was told everything was fine, and the pain was probably due to ligaments stretching. I eventually had to pack up studying, as I spent most of the time laying down to feel comfortable. When laying down watching television, I loved feeling the baby move inside me. I used to rest the television remote control on my tummy, when I would feel a fluttery feeling across my bump, and suddenly the remote control was tossed off my tummy where the baby had kicked.
One morning I discovered a slight spotting of blood on my underwear. Panic ran through me, and we immediately made our way to the hospital. I was seen as soon as we arrived. The results of a scan showed everything was OK, but as I was by now 27 weeks pregnant there was a real concern I may go into premature labour and deliver the baby to early. I was placed in a labour ward for a few anxious hours. All this lead to an increase in spasms and involuntary movements. The tension in my muscles was so bad I became unable to pass urine which was very painful. In the end a catheter had to be inserted to empty my full bladder. Having not gone into labour I was placed on a maternity ward to be closely monitored. After a week in hospital the bleeding stopped and I was allowed home. A few weeks later at an ante Natal appointment, I was in pain again. This time, my consultant obstetrician took no chances and admitted me into hospital. At 35 weeks pregnant I was to stay in hospital until I had the baby. During the next two and half weeks, I was closely monitored. Then on the 5Th October 1994, at 11.05am, I had a Cesarean section to deliver my beautiful daughter Laura.
Labels: Cerebral Palsy
My first scan
My own personal experience of pregnancy
The thought of being pregnant sent my head spinning. I had a joyous rosy image of myself, being the proud mum of a beautiful bouncing baby, looking very happy without a care in the world. Then it suddenly dawned on me, I was pregnant, I was disabled with Cerebral Palsy, I couldnât walk, I can be unsteady, I was in a wheelchair. Before finding out I was pregnant, I had always managed to do most things in my own way, despite my disability. Nothing bothered me, I just carried out tasks without thinking. But, a tiny Baby! Reliant on me to provide itâs every need. This was most certainly unknown territory to me,where my disability was concerned. My mind kept on going from immense elation to a feeling of despair, and visa versa.
I had disabled friends who had children, but their disability was different to mine. Even those I knew with CP, the level of how their CP affected them was not the same as mine. At the back of mind I imagined myself handling a baby pretty well, in a manner that suited me in my own home. But, at the forefront of my mind was a daunting road ahead. I had to get through the next nine months of pregnancy first.
Labels: Cerebral Palsy
Cerebral Palsy and Pregnancy
Ante-natal care
Whether your routine ante-natal care takes place at a hospital or doctor's surgery, to accommodate any physical needs regarding your Cerebral Palsy, you may have to check access and if the examination bed is height adjustable. A community midwife may also be able to visit you at home. If your physically impairments make examinations feel uncomfortable, discuss using a different positions which may make medical procedures easier.
During Pregnancy
Every womanâs experience of pregnancy is different. There are so many changes going on inside the body while carrying a baby. From morning sickness and constipation, to the stretching of ligaments, which can be painful. You may find you need to enlist a support person when pregnant, if morning sickness is severe, or tiredness occurs in late pregnancy, making normal tasks more strenuous. In late pregnancy, if there is a need to rest more and more, a recliner may seem most comfortable, rather than a bed.
Caution must given if you take drugs for Cerebral Palsy, or Epilepsy, as certain medications may effect foetal development, and should always be discussed with an obstetrician or your GP.
Preparing for the Birth
Preparing for the birth is inevitable, and will need as much detail as possible. As with the majority of births, the order of things can go into disarray. Keep an open mind, as the best laid plans may have to be abandoned due to unexpected changes. Mum, knows best, and with plenty of discussion and support, things should go smoothly. We would all like to be able to give birth naturally, but it may not always be possible. A Cesarean section can be performed for many reasons, and is an assured option of a safe delivery.
Useful Links
Disability, Pregnancy & Parenthood international
Books
Labels: Access, Cerebral Palsy, epilepsy
23 July 2008
What Does it Feel Like?
I have had people show me their BIOS and prejudice; attitudes, and I have reasoned and maneuvered around, about, and above all the insensitivity's of human nature. I did not let people, places or things put there mark or classification on me! I left them with a mark! I left them with the teaching and knowledge: that I am like everyone else in this world. I may have C.P. and a slight inconvenience, but I am just like you! I have also instructed and imparted, by my deeds and words to be treated with dignity and respect. I have taught and educated by the path that I have taken. I have not only been assertive, but through my own tolerance, love, sincerity, kindness, and determination to light up and wake up this world. Through my actions, I have climbed the highest mountain. And I will continue to climb! I will not sit back and lethargically let people step over me any time they wish. I will teach by being me, compassion for all!
Labels: Cerebral Palsy, Disability
Why Can't People Understand
We work 10 times harder to fit in, in order to make some kind of normalcy of our life. We do this for ourselves, just to be included in the community of our world just to be and feel like normal people who fit in If man-kind only knew!
If they only new the effort we put forth! If only they knew inwardly what we go through daily, if they could feel what we feel what we feel every day of our lives.
If they had to cope and deal with the challenges we have before us, with our disabilities, and tried to put forth the effort we do, on a daily basis physically, emotionally, and spiritually, I don't think they could handle it!I don't think they could or would be able to keep up the brave front. I don't think they could constantly keep smiling. I don't think they could handle the inner emotions we go through I really personally don't think they could last very long!
What do you think I pose this question to all of you reading this entry.
Labels: learning
A Growing Day
Even though it was very stressful, I was able to give to others in a kind and gentle way. I was able to give hope, and I was able to share from my heart that they are not alone in there feelings. I was able to come through this day feeling grateful, and thankful. I was also very grateful I had someone special to listen to me and my feelings so I could let them go.
You know, at times it's not easy trying to speak up for yourself, being heard, respected, or treated equally. One has to learn to accept others and be willing to agree to diagree and let be what needs to be. Especially when you act, and do things just like any other person in this world, but your physical body looks different than the norm- because you have C. P. since 5 months old, and an invisable learning disability, that as much as you try to educate and explain to others, they just don't ever get
Labels: learning
Exercise pays back the effort
GROWING UP on an able-bodied street and going to an able-bodied school with cerebral palsy (CP), one of the biggest frustrations was not being able to participate in competitive sports. That said, my health story is a positive one and physical activity plays a major role in my life.
I was born with a moderate form of cerebral palsy known as diplegia. I live with tight muscles, exaggerated reflexes, rigidity, slowness, awkward movements and poor balance.
In order to move about and stay standing without falling over, my mind must be fully alert. I like to think of the mind as a sentry guarding the castle gates telling my body to "lift the foot, bend the knee, heel down, straighten out. . .". I describe it as "walking with my head".
A lapse in concentration or a tired mind means that I am liable to fall down like Humpty Dumpty. There are times when I think I could do with the help of a crane to pick me up, and a frame to straighten me out.
Exercise has been a part of my life for as long as I can remember. I had a three-wheeled bike as a child. I learned early in life about the need to do exercise and keep the limbs supple.
Now I cycle, swim and hillwalk. My bike is my prized possession. It has helped me overcome many of the restrictions the condition imposes on my body. I have cycled from Sligo to Dublin via Kerry and Wexford, as well as a tour in the south of France.
Hillwalking became a big part of my life as an adult. I have climbed Croagh Patrick, Carrauntuohill, Mount Brandon as well as Snowdon in Wales. Hillwalking, cycling and swimming are tough with a body that is hardwired for spasticity, rigidity, dodgy balance and slowness, but the payback of a positive sense of mental and physical wellbeing makes it more than worthwhile. Going to the pool and doing lanes for half an hour or, if time allows, heading for the hills and stamping over a mountain or two, are great ways of overcoming negative energy.
When people see me walking in the city they wonder how I can hillwalk. I can't explain it, but it is almost as if I switch into a different mode and walk in a different way when I put on my boots and get my Nordic sticks out.
I do my hillwalking with a great group of friends. I've climbed Carrauntuohill three times. I have to warn people not to walk behind me because there is a lot more lose scree behind me than normal.
Yes, I feel tired on the way home, but it is the kind of tiredness that has you glowing inside, glowing with an energy and zest for life that makes the effort so worthwhile. The mental and physical payback makes it worth it.
It takes me a couple of days to recover from a hill walk. I have to be sensible.
Going forward I am somewhat fearful of the frequency of rigor mortis-type attacks that affect my limbs, and bouts of fatigue, but I try not to think about this too often.
The type of wellbeing I experience is available to most people, even people with disabilities. It does take effort and discipline, but I would encourage anyone who can to do it. I think that at times people give up too quickly.
There is so much negative comment about the health system, but I've been blessed with a positive experience.
Two groups keep me going - the physiotherapists in the Central Remedial Centre and the orthotic and prosthetic department in Cappagh Hospital. That said, aside from the CP I'm a regular ordinary healthy guy.
As a kid I wanted to be as good as my peers, to keep up and be part of the gang. My parents sent me to the local national school in Rialto, which was very unusual at the time. It was only in later years that I realise what a major decision that was.
There have been challenges and difficult times, but I have had the good fortune to be able to ride the storm quite well.
Yes, CP is a physical challenge, but for me, particularly as I get older, the mental health aspect is more challenging.
One of the lifelong challenges that I face is overcoming the frustrations I feel at not being able to do all I want. My mind tells me that I should be able to compete with others on an equal footing but my body says differently.
I want to be able to climb the world's highest mountains, sail the world's roughest seas, run fast-paced marathons, swim like Mark Spitz, ride a 1200cc Kawasaki motorbike, join a feisty hillwalkers group and stay the pace, but it is not going to happen.
These lifelong frustrations seem always to be there, and while I do cope reasonably well with them I continue to struggle with my condition, and perhaps I always will.
There is so much focus on physical health and not enough on mental health. My sense is that the mental health issue is one that people tend to stay away from.
It is as if people think you can separate the two, but you can't. They are just different sides of the one coin.
For me, physical activity keeps the demons behind bars. It could be said that it is an addiction, but it is an addiction that harms no one.
Cerebral palsy: the facts
Cerebral palsy is a physical condition which affects the part of the brain that controls movement and posture. People with cerebral palsy have difficulty controlling their muscles and may move jerkily or hold themselves awkwardly.
Cerebral palsy can be caused by a number of things, such as an illness during pregnancy, a lack of oxygen as a result of complications during birth, or as a result of a serious accident or illness after birth.
The degree of severity ranges widely.
Some people are only mildly affected, taking only a little longer than others to sit up and walk. People with a moderate degree of cerebral palsy may require a wheelchair or walking aid for mobility. Some people are affected very severely, and can do very little for themselves physically.
Therapy and special aids can help people with the condition to control the movement of their muscles and maximise their ability to move.
More important than therapy however, according to Enable Ireland, is empowering people with cerebral palsy to lead independent lives.
For more information contact Enable Ireland on 01-8727155 or see www.enableireland.ie
Labels: Balance, Cerebral Palsy, Physiotherapy
A Bracing Study on Scoliosis

Spine specialists across the country are conducting a breakthrough trial on scoliosis or curvature of the spine.
They are studying boys and girls ages ten and older to find out if back bracing treats scoliosis and/or prevents surgery.
Dr. Charles Mehlman is one of the lead investigators in this study, the largest pediatric orthopedic clinical trial ever funded by the National Institutes of Health.
Some spines don't straighten even after years of bracing, which delays surgery to insert instruments that will do the trick.
Researchers hope to do in this trial is find out more, and it could make a big difference in helping those with this condition get the right treatment and early intervention --earlier than ever before.
âWe want to find out if we have been using bracing enough or not enough,â Mehlham said.
The trial randomly assigns patients to a brace or no-brace group.
That answer is expected to come through close follow up of these patients for the next couple of years.
If back bracing doesn't appear to be enough, surgery may be suggested at younger ages to correct the condition.
Labels: Scoliosis
22 July 2008
The Quest to Help All
I ask you- when are we all going to work together for this vital cause? Am I the only person out here that does such a thing? Where did everybody else go? I ask What have you found out there in this big expansive place we call the world? I'd be interested in hearing your response.
I am very happy to announce that my chair aerobics video is now available for viewing on my web site.
Labels: learning
In a Days Work
20 July 2008
'Revolutionary' plans for welfare

Welfare reforms due to be unveiled - including abolition of the incapacity benefit system - will "transform lives", says minister James Purnell.
The work and pensions secretary said they would offer more help to return to work, but responsibility was "vital".
There are also plans to force long-term unemployed people to work for benefits, according to a draft leaked on Friday.
Tory leader David Cameron said it was "great" the government had taken up ideas recently proposed by his party.
He promised the government the support of Conservative MPs to get the measures in the Welfare Green Paper through Parliament if they faced a rebellion by Labour backbenchers.
Speaking on the BBC's Andrew Marr show Mr Purnell said the proposals for England and Wales were "revolutionary" and would put responsibility "right at the heart of the welfare state". The worst thing about the old system was, people were given no help at all... to improve their health, to get back to work, to improve their confidence
James Purnell
The draft paper - to be published on Monday - said there could be "no right to a life on benefits" for anyone capable of working.
Mr Purnell said he welcomed Tory support because it meant doing "the right thing for the country", but said the Conservatives were placing the emphasis on responsibility without providing any support.
On incapacity benefit he said the old payments would be scrapped, claimants reassessed and a "completely different benefit" introduced.
"The worst thing about the old system was, people were given no help at all. They weren't given help to improve their health, to get back to work, to improve their confidence.
"We will make sure for the first time that everybody gets that help. And one of the revolutionary things that happen is that we will be using the benefits that we would have spent if people had stayed on the benefit... to get them back into health and back into work."
He said the government wanted to get one million people off incapacity benefit by 2015.
In February government welfare adviser David Freud suggested less than a third of the 2.7m people claiming the benefit were doing so legitimately.
'Tough choices'
Friday's leaked report said ministers were also proposing a "work for dole" scheme, requiring people to do "full-time activities" to benefit themselves and their community.
It said everyone other than severely disabled people, carers and parents of young children should be expected to look and train for work.
People who do not take up the offer of support would lose benefits, said Mr Purnell.
Giving his response to the Green Paper, Mr Cameron said: "Great - the government has taken up our ideas. I am absolutely thrilled at that.
"What (Mr Purnell) has done is very much taken the ideas we came up with in January, that are very clearly thought through and involve tough choices."
Mr Purnell said he "completely disagreed" that the proposals would be unpopular with some Labour colleagues.
"I think that people who see the way incapacity benefit or drug addiction or deep unemployment can scar communities are desperate to turn that round and when I speak to my colleagues they want a system that provides support for people, but also responsibility."
The government had already announced plans to make young people who have been out of school, training or a job for six months to do at least four weeks' "work-related activity".
The document suggests extending that to the long-term unemployed and says while it has yet to consult on how the schemes would work, they would involve "individuals engaging in a variety of full-time activities of value to themselves, their community and prospective employers."
Labels: Carers, David Cameron
Government cash is communication breakthrough
The government has announced a package worth over ÂŁ50 million in an effort to improve services for children with communication needs.
It came as the Conservative MP John Bercow published a report into his review of the existing services for children and young people with communication needs. The review was commissioned by the government.
His report puts forward 40 recommendations aimed at ensuring that children with communication needs are identified at an early stage and that they receive better support.
Key recommendations include a âcommunication championâ to drive delivery of reforms and improve local performance; better training for professionals; and research into improving the life chances of children with communication needs.
Katie Caryer, a campaigner for people with communication impairments, welcomed the new funding and said: âThis is an important move for children with all sorts of communication needs.
âI think we can be very happy about these developments. What I hope for is a move like this involving adults soon.â
Jon Sparkes, chief executive of the disability charity Scope, also welcomed the government's announcement and said: "Currently, thousands of children and young people who need equipment to communicate are denied their right to express themselves freely.
âThe reviewâs recommendations will be instrumental in ensuring that disabled children and their families are no longer denied the equipment and ongoing support they need or sent from pillar to post to get it."
Children, schools and families secretary Ed Balls said: "I want to ensure that all children are supported to communicate whether they are severely impaired or because they simply need help to expand their vocabulary.
âThis review will make a real difference to all children who need support at both ends of the spectrum."
The government has accepted Mr Bercow's recommendations. It will address them in an implementation plan in the autumn.
Pictured: Natalie Sides, a communication aid-user who has been involved in Scope and BTâs No Voice, No Choice campaign that helps people with communication impairments receive the equipment and support they need
19 July 2008
Sophie walks tall after serious spinal surgery

A TEENAGE girl recovering from surgery is trying to raise awareness over a debilitating spinal condition.
Sophie Equi (16), whose father David is the managing director of the Hamilton-based restaurant Equi’s, was diagnosed with scoliosis, or curvature of the spine at the age of 14.
But she was told by a doctor that while one of her hips was more pronounced than the other, the condition was normal.
After a growth spurt a year later, however, she experienced aching pains in her lower back and the condition got worse.
She now lives in Perth and was referred to the Royal Infirmary in the city for further investigation.
X-rays showed the extent of the scoliosis and the orthopedic surgeon there did not specialise in the condition and he referred Sophie to specialists in Edinburgh.

The former St Mary’s Primary and Holy Cross pupil said this week: “During the consultation the surgeon said that the only option was to have surgery otherwise I would become permanently demobilised and in constant pain.
“That was the worst day of my life. There was also a possibility of paralysis if, during the operation, my spinal chord became damaged.”
In February, Sophie went through an eight-hour operation involving 11 specialists.
She explained: “I was sliced open from the nape of my neck to the base of my spine.
“Two long titanium rods were screwed to my spine to straighten the curves and a bone graft taken from my pelvis used to fuse my spinal vertebrae.”
The operation was a success, but she lost her appetite for weeks and the morphine prescribed for the pain caused hallucinations and side effects.

Her muscles were pulled in awkward directions during physiotherapy and she found it unpleasant, but it helped her regain the confidence to walk on her own.
Dad David said: “She has shown tremendous spirit in overcoming this problem, her recovery was remarkable and she is an inspiration to anyone having major surgery.”
Sophie added: “I had to have the operation, I couldn’t spend the rest of my life restrained by scoliosis.”
“I believe that if everyone, including GPs, parents, teachers, children and MPs had access to knowledge of scoliosis it would help tackle the problem.
“It’s not something I can turn away from, and I will be contacting a charity ‘The Scoliosis Association’ that raises money for research and raising awareness.”
Visit: http://www.sauk.org.uk
Labels: Access, back pain, Physiotherapy, Scoliosis
Here is a note from Dr. Loewenstein
Support the expansion of Susan Bennettâs Living With Cerebral Palsy Website and receive a free signed copy of âFor the Love of Rachel: A Fatherâs Storyâ, winner of Reader Views 2007 Inspirational as well as Non-Fiction Book of the Year by David Loewenstein PhD, Professor of Psychiatry and Behavioral Sciences at the University of Miami School of Medicine. No amount is too small, but the first 5 people who contribute an amount 50 Euros The XE.com Universal Currency Converter will receive a free inscribed copy by both the author and his daughter Rachel!
Here is a note from Dr. Loewenstein:
Several months ago, I had the pleasure of meeting Susan Bennett who runs the website Living with Cerebral Palsy. Susie, who was born with Cerebral Palsy and later diagnosed with scoliosis in her 20s developed a wonderful website to provide information and support to individuals with cerebral palsy and other disabilities. Having a daughter with cerebral palsy as well as visual and hearing loss, I was intrigued with all of the useful information provided. In my subsequent conversations with Susie, I learned how committed she is to providing valuable information about CP and expanding the site to include information and support for so many other people with disabilities around the world. People like Susie help to build bridges that connect people and I am proud to contribute to building and upgrading the website that Susie has maintained for years with her modest funds. I encourage all of Susieâs readers to s upport her effort in maintaining and expanding her wonderful site. No donation is too small and all funds go to helping to expand and enhance this valuable website and the positive impact that it can make for people with disabilities and their families. We all have to stick together, so I hope that you will consider making a donation today. Wishing you many precious moments of happiness and success.
- David Loewenstein, PhD, Board Certified in Clinical Neuropsychology
Author: For the Love of Rachel: A Fatherâs Story www.enalan.com
Labels: author, Cerebral Palsy
18 July 2008
Paralympian Stephen Miller publishes book
Born with cerebral palsy, he has overcome prejudices, physical limitations and the death of a close friend to become a record-breaking gold medallist and an inspiration for hundreds of disabled athletes.
âMy friends say Iâm way too young to have an autobiography yet,â laughs Stephen, as he sits on the sofa at the home he shares with his parents Ros and John.
âItâs been really hard work and itâs taken me two years but Iâm glad I did it.â
The front room in the semi-detached house in Cramlington is a showcase of Stephenâs triumphant sports career.
There are two glass cabinets crammed with medals, including his three gold Paralympic gongs, the walls are adorned with signed photographs of him meeting sporting stars and a trophy he received for North East Sports Personality of the Year sits proudly on the windowsill.
Above Stephenâs head hangs a striking image of the athlete, overcome with emotion and wiping away a tear, after winning a gold medal at the Paralympic Games in Athens.
These are just a handful of the accolades he has received over the years.
âThis is another one of his world records,â says his mum as she holds aloft a silver plate inscribed with his name.
When asked how many he has, she smiles, âWeâve lost count.â
His achievements are outstanding.
He has won gold medals for throwing the club at the Atlanta, Sydney and Athens Paralympic games and is the current world, Paralympic, European and National record holder for the sport.
A quick tally of his honours show he has 15 international medals for club and six for discus while nationally he has notched up 19 gold medals and one silver for both club and discus.
âI have achieved so much it is hard to pick out one as my greatest achievement,â says Stephen, who works as a web developer for the Queen Elizabeth Hospital in Gateshead.
âEach one in itself is a massive achievement for me. Personally, getting working and getting a job is one of the biggest achievements to me.â
Stephen was born on May 27 1980 at Princess Mary maternity hospital in Newcastle.
It was a difficult birth. He was born in the breech position and starved of oxygen during the delivery.
His parents were devastated when he was diagnosed with athetoid cerebral palsy, a form that results in involuntary movement, but instead of suing for compensation they decided to concentrate their efforts on giving their son the best life possible.
They treated Stephen no differently from his younger brother Jonathan, who came along six years later.
He says: âMy parents brought me up as a normal child.
âThey never mollycoddled me and I was always going out and playing in the street with the other kids.
âWith my disability I have learned to get around things.â
There have been many times over the years that Stephen has wondered what his life would have been like if he didnât have cerebral palsy.
But he tries not to dwell on it and instead prefers to exude a positive outlook .
âIt is something that does go through my mind especially in your teenage years,â he says. âIt becomes more obvious you are not the same as your friends.â
One of the things the athlete is most passionate about is promoting disability sport in the region and fighting prejudices that many disabled people face.
He trained as a coach so he could help young people achieve their goals, just like he did. âOne of the hardest things in my life has been dealing with other peopleâs perceptions,â says the ardent United supporter.
âItâs getting better though and disability is a lot more accepted in society.â
One of Stephenâs role models since he started doing sport at the age of 11 was a man called Norman Bates, himself a medal-winning Paralympian, who inspired the young boy to excel in sport.
Sadly, the man he admired died in late 2002 and his death hit Stephen hard.
âHe was there for me from the start. He was an ex-Paralympic athlete and someone I looked up to.â
Stephen has dedicated his autobiography to Norman, as well as his family, who have been a tremendous support to him throughout his career.
Kevin Keegan, who the Paralympian first met when he was three, has written a glowing foreword to the book.
Photographs included among the pages is a whoâs who of the sporting world.
As well as the United manager Stephen has met Alan Shearer, John Burridge, Bobby Robson, Kelly Holmes, Boris Becker and Sebastian Coe, to name a few.
So, not even into his 30s and with so much behind him, what else does he want to do? âI would like to be an ambassador for disability sport,â he says.
:: Paralympian: My Autobiography by Stephen Miller, is published by Tonto Books on July 28, priced ÂŁ9.99, and available from all good bookshops including Amazon, Borders, Waterstones, Fenwick and The Back Page.
The book will be officially launched on Thursday July 24 at Club 206, St Jamesâs Park, at 7.30pm. Readers are invited to attend the free event.
See tomorrowâs Chronicle for extracts from the book.
Labels: Athetoid Cerebral Palsy, Cerebral Palsy, Sports
17 July 2008
Carer mother wins employment case
The European Court of Justice ruled Sharon Coleman suffered discrimination by association over her resignation from her legal secretary role in 2005.
She left London firm Attridge Law as she was not allowed flexibility to care for her son, who has hearing problems.
The court ruled primary care givers were entitled to equal treatment.
Employment and discrimination barrister Ed Williams, of London law firm Cloisters, said: "The significance of this ruling cannot be overstated.
"There are literally millions of carers in the UK and the rest of the EU who now have greater protection against discrimination."
'Unwanted conduct'
Previously the Advocate-General had agreed that Ms Coleman suffered "discrimination by association".
In its ruling the European court said the prohibition of direct discrimination "is not limited only to people who are disabled".
It found the treatment of Ms Coleman amounted to harassment and discrimination.
The legal secretary claimed her former employers described her as "lazy" for wanting time off to care for her son Oliver, who was born in 2002.
She said she was not allowed to work from home or work flexible hours.
Oliver suffers from hearing problems, and serious respiratory problems, including apnoeic attacks - an involuntary halt to breathing.
She also said she was forced to take voluntary redundancy because she was not allowed as much flexibility in her work as parents of other children.
She began a claim for constructive dismissal and disability discrimination five months after her resigning.
Labels: Carers, Employment
If this kid doesn't make you smile, you probably need your own day
Assisated Walk Challenge
Mayor Susan E. Low proclaimed Wednesday as "Ben Spengel Day" in McHenry, and Ben Spengel is having quite the day. The 11-year-old arrives at camp in the morning to cheers, a feast of "Ben Spengel Day Cupcakes"and the presentation of a special "Ben Spengel Day" T-shirt. And now he is poised at the starting line for the inaugural "Assisted Walk Challenge" - or as he calls it, "a race for people like me."
Born with spastic diplegia, the most common form of cerebral palsy, Ben has been in physical therapy since he was 10 months old. His muscles are weak and tight. Parents Keith and Trish Spengel, a former Daily Herald reporter and old friend, advocate and fight to make the world better for Ben, while they push, prod and encourage Ben to be the best he can be. The boy still uses a wheelchair for long trips, but Ben prefers arm crutches or his walker. His little brother Dane, 8, has the body of a natural athlete.
"Ben has so much desire and really can't compete physically," Trish Spengel says.
As Dane played baseball, soccer, basketball, golf and other sports, Ben cheered for his brother and served as equipment manager. But watching his little brother effortlessly play the games Ben would give anything to play took its toll on the older brother.
"When my brother quit baseball, I had a fit," Ben says, sheepishly grinning at the memory of his whining. "Mom gave me a pep talk, telling me to concentrate on what I can do."
She told Ben to live his life, not his brother's.
"Figure out what you can do, and then just work really hard at being really good," Trish told Ben.
"A few weeks later, he came up and said, 'I think McHenry should have a wheelchair race,'" the mom recalls. "He came up with a plan, real detailed, like where the concession stand should be."
While shopping at Wal-Mart, Spengel ran into Low. Ben told her about his idea of adding the Assisted Walk Challenge to the city's annual Fiesta Days' track and field meet.
"We met and we talked, and he told me what he was thinking and what his idea was," says Low, who was a special-education teacher for 33 years before she became mayor. "I hoped he would take it on and make it his own. After meeting him for five minutes, I knew that he could. He's amazing."
The mayor inspired him.
"So I basically got right on it," Ben says, admitting that he did watch one TV show first. At home on the computer, where he is anyone's equal and then some, Ben typed up his outline, brought his proposal to an agreeable city council and the Assisted Walk Challenge went from dream to reality.
"I love to see that he took it upon himself to create some of his own opportunities," says Brian Shahinian, executive director of the Northern Illinois Special Recreation Association, which provides 500 programs that serve 1,300 people throughout McHenry and parts of Kane, Lake and Cook counties. "It really serves as a great example. We give credit to him and his family. Those are the kinds of skills NISRA is looking to develop in all the people we serve."
"He has guts. That's for sure," Low says. "Their whole family is so inspiring."
Working with Pattie Lunkenheimer, athletic program coordinator for McHenry Parks and Recreation, Ben got his events (a 25-meter race, a relay, a softball throw and discus toss) on Wednesday's schedule, for kids, ages 6 through 14, who use crutches, walkers, canes or wheelchairs.
On June 5, his 11th birthday, Ben made a presentation at his Chaucey Duker School, winning cheers with his affirmation about how "we can cheer each other on."
The most incredible thing was when he asked me to his school and I watched him stand up before his entire fourth grade and gave a speech. That's hard for adults to do," Low says.
"As you've probably seen, it's not that easy for me to get around or compete in sports," Ben told his classmates. "But that doesn't mean I don't want to."
An energetic Cub Scout, Ben smiles all the time, and laughs when he's nervous.
"He's pretty fun. People seem to really like him," Trish Spengel says, noting how Ben gets along with kids from his school, as well as enjoying a great relationship with his brother. "They're not just accepting. They're friends."
Usually the beneficiary of his brother's cheers, Dane roots for his brother on this day.
"I'm excited because he worked really hard on this, and I'm really proud of him," Dane says.
Ben's smile and personality leap through barriers his body cannot. He's quite the ham on a video at nisra.org. At his day camp, counselors who realized how much Ben longed to play baseball invented a similar game using a tennis racket as a bat. They call it "Bennis."
Now, Ben's got his own day. He changed a small part of the world by adding "people like me" to a suburban festival.
"This was missing," Low says of the Assisted Walk Challenge. "Now it's not missing. That's the part I think is so cool."
The starter's pistol fires. The race begins. Ben rumbles forward on his four-wheeled walker as he and Kaleigh Rogers, 10, of Wonder Lake, smile all the way to the finish line.
The thrill of victory is "just to be able to participate," Lunkenheimer says.
"Thank you for participating," an out-of-breath Ben tells Kaleigh.
They are competing.
They are athletes.
Ben Spengel has had quite a Ben Spengel Day.
"I'm not asking for this," Ben says quietly, "but I'm just wondering: Is it Ben Spengel Day every year or just this once?"
Labels: Cerebral Palsy, wheelchairs
16 July 2008
Bowen Movements
Today I have been on the Unison Strike and therefore not at work, so I managed to fit in an early appointment and it also meant that I could walk to the physio department because usually I go after work and am always in my powerchair, so it was nice to be able to walk in on frame and it also let my therapist see my progress.
I gave him a full run down of everything that had been happening since my last session, and then I showed him the most profound think that had happened and I proceeded to leave go of my frame and stand completely on my own for a short period of time without wobbling!!!
During my session he did some work on my coccyx which was something new and I have to say I feel a bit odd but but great if you see what I mean. It is a weird sensation and my head feels like its going to explode and my legs feel a bit like jelly but I know this will pass and looking forward to the results.
Labels: Bowen Therapy, The skies the limit
15 July 2008
10,000 People In World-first Cerebral Palsy Study
One of the world's most serious complications during pregnancy and birth, cerebral palsy is a disability that affects one in every 500 children worldwide, and the consequences are life long.
Over the next two years the researchers will test 5000 participants from families affected by cerebral palsy, while the other 5000 without an affected child will consist of a control group.
"Our study will investigate a key issue behind cerebral palsy: whether genetic factors make women more vulnerable to environmental risks that affect the brain of their unborn child. These risks -- such as prematurity and infections -- combined with genetic susceptibility mean that babies could be at double jeopardy of cerebral palsy," says research leader Professor Alastair MacLennan, Head of Obstetrics & Gynaecology at the University of Adelaide . PhD student Michael O'Callaghan is the national coordinator of the trial.
"Recent studies by our group suggest that cerebral palsy may be associated with genetic and other mutations that may increase blood clotting within the brain," says Professor MacLennan, who is also head of the South Australian Cerebral Palsy Research Group, the world's leading research group into the causes of cerebral palsy.
"An association between cerebral palsy and different types of herpes virus infection -- such as cold sores and chicken pox -- has also been discovered in South Australian studies.
"The next step is to see if this is true in a much larger population, comparing the genetics of both mother and child," he says.
People with cerebral palsy lack control of their movement and posture as a result of brain injury in the neuro-motor region. The symptoms vary greatly in severity, ranging from poor muscle co-ordination to quadriplegia.
Cerebral palsy is usually present from birth. The injury to the brain does not get worse over time.
"It was once thought that cerebral palsy was caused by low oxygen levels during birth. However, this is rarely the case," Professor MacLennan says.
"Obstetric care and caesarean deliveries have increased six-fold over the last 50 years, but the incidence of cerebral palsy cases has remained the same. Most of the cases are associated with problems during pregnancy and possible genetic susceptibility. Currently there is no cure or way to prevent cerebral palsy," he says.
"If our research confirms that there are genetic mutations that can lead to cerebral palsy, specific disease preventions may be available for individuals.
"In the future, gene therapy may allow doctors to alter the aberrant genes in a mother or fetus, or specific drugs could be used to counter the effect of genetic mutations and ultimately prevent a child from developing cerebral palsy before birth.
"Knowledge of a patient's genetic makeup and tailored administration of anti-inflammatory drugs before and during pregnancy may be possible. Immunisation against viral infections also may be a future option when this preventative therapy is available," he says.
Labels: Cerebral Palsy
Parents of cerebral palsy patients fight planned suspension of treatment
Al-Amal works specifically with those children suffering from cerebral palsy. The center currently assists 176 cerebral palsy patients.
In response, Labor and Social Affairs Minister Amat Al-Razaq Hummad ordered an investigation into the complaint. Hummad urged the patientsâ families to be patient with the ministry, as it has a limited budget for cerebral palsy treatment.
Patientsâ families say their childrenâs medical conditions have gotten better with the constant physical therapy. Basic therapy sessions for the one child cost the ministry approximately $200 per a month, while intensive therapy sessions, which include methods involving such things as a TheraSuit, which uses electrodes to help the children master motor skills, can run $1500 per a month.
Um Rayan Abdullah stated that her son has been receiving intensive physical therapy for two years now and he has progressed a lot. âWhen I brought him to the center for the first time, he couldnât sit or move any part of his body," she said. "But now with constant therapy, he can sit and move his legs and hands,â she added happily.
The father of patient Fahd Al-Oqbi pointed out that his son received basic therapy for five months and began intensive therapy one month ago. âMy son's neck was hanging when I brought him to the center for the first time, but now he can control the movement of his neck and move his body parts,â he said.
According to Al-Amal Center, the Ministry of Labor and Social Affairs is trying to decrease the centerâs activities and intends to eventually stop providing funding altogether.
âThe Fund for Handicapped Patronage and Qualification, which is directly responsible for providing supplies, has decided to stop funding the physical therapies,â notes the centerâs manager, Arwa Thabet, adding, âSomeone said itâs because of the budget.â
What is cerebral palsy?
The United Cerebral Palsy, or UCP, organization describes the condition as âa group of chronic conditions affecting body movement and muscle coordination. It is caused by damage to one or more specific areas of the brain, usually occurring during fetal development.â
Cerebral palsy is incurable but non-communicable, and children born with it do have the ability to improve their motor skills over time. According to the UCP, those with cerebral palsy often have muscle spasms, problems with their eyesight, hearing or speech, seizures and sometimes mental retardation.
According to Thabet, there are two types of therapy, the first of which involves pills, such as antispasmodics, which help CP patients control their seizures or movement spasms.
The second type of therapy is physical and occupational, focusing on training the children to control their large and small motor skills through gait-training machines, among other techniques. Thabet points out that the TheraSuit is considered a new type of physical treatment for CP, noting that Yemen received it well before any of the Gulf countries brought it to their shores.
âI have 11 Egyptian employees, each of whom is paid at least $1,000,â Thabet explains. âIf the Fund for Handicapped Patronage and Qualification decides to stop funding our center completely, Iâll be forced to dismiss at least half of them because the financial burden will be too great.â
Thabet adds that the center also receives approximately $2,000 every six months from the World Health Organization.
Former Minister of Health and Population, Najeeb Ghanem, says more than 100,000 Yemeni children have cerebral palsy. âMost of these children belong to poor communities, so their disabilities create an additional burden for their families; therefore, they are considered the poorest among the poor,â he explains.
According to statistics from the Central Apparatus for Oversight and Accountability, more than a million children in Yemen are mentally and physically disabled, approximately 100,000 of whom have cerebral palsy
Labels: Cerebral Palsy, Occupational Therapy
Wii may help cerebral palsy sufferers
The must-have Nintendo Wii game may hold unexpected benefits for young cerebral palsy sufferers, according to a new research project set up in Britain.
Older people recovering from strokes have also gained from Nintendo Wii use.
Researchers have been encouraging children with hemiplegic cerebral palsy to play specially-written computer games, in order to improve muscle movement and hand-eye co-ordination.
Around one in 1,000 children suffers from hemiplegia - a type of cerebral palsy that affects one arm and one leg on the same side of the body.
The new games have been designed to improve these children's control of their disabled - or paretic - arm.
Ten children and their families in the North East of England have been trying out the games over the past three months with 'striking' results, according to the scientists involved.
Professor Janet Eyre, leading the research, explained that children with hemiplegia find it difficult to use what she calls their 'never learnt to use arm.'
'The children find it very hard to move this arm so it gets stiffer and stiffer.
'These games mean you have to use two hands co-operatively and we have designed the games so there is quite a lot of eye movement.
'We're trying to use the knowledge we have to create games which are fun to play.'
One of the games involved exploding balloons, with one hand targeting while the other hand fires the gun, Prof Eyre, of Newcastle University's Institute of Neuroscience, said.
'The graphics are quite simple to follow. They're designed to be fun and very competitive.
'There has been a big improvement in arm function and in hand-eye co-ordination. We're getting them to the stage where, without thinking about it, they use that hand.'
Labels: Cerebral Palsy
Naidex 2008
On entering Naidex we planned to follow a well thought out route to see each stand. But, as is usually the case, there was so much to view, our strategy was forgotten. I was particularly eager to see a feature showing a Future Lifestyle Home, using assistive technology. Entering the house through a garden, assistance garden tools were on display from Peta uk. Peta uk, not only sell garden tools, but kitchen tools and other small gadgets.
The street door was an automated door system. Automated door systems, uses the very latest in access control technology. Only one click on a remote control button, opens the door, and can be worn as wrist strap, neck strap or operated using a key fob. A Phone entry system, can be a wall phone, video phone or remote phone deck.
The first room is the Kitchen installed by Design Matters. One innovative appliance is the Bosch Oven with a side hung door and telescopic shelves that lock and donât tip. Incorporated underneath the oven is a heat resistant pull-out shelf, which I thought was very useful if you need to check or turn food during cooking. There was several appliances including, a compact dishwasher which fitted under a low work top. The sink was fitted with a steaming hot water filtered kitchen tap, eliminating the need to use a kettle.
To reach into cupboards, there was a magic corner system. Essentially for corner based cupboards, non slip shelves attached to a door come out when cupboard is opened. No more bending and stretching! Homecraft and Really useful things, are both suppliers of helpful gadgets for around the home.
In the living room you can control a lot of electrical products. Pre-programmed, by Possum uk Possum uk, touch screens can operate various things in the home, increasing independence with advanced technology. The Possum Primo, is affordable, lightweight and robust in design. The Primo can hold up to 140 infrared codes with multiple menus for controlling a domestic environment. If you require a workspace in your home for a computer etc, QED retails an adjustable table. It has a split level surface, good for supporting books, magazines and lightweight devices.
In the bathroom, on show was a new design shower cubicle from Impey. Also in the shower cubicle, was a Triton body dryer keeping whole area nice and warm. The hand basin was height adjustable, cleverly designed to provide arm support. The Balena 8000 toilet was a state-of-the-art remote controlled bidet, with individual adjustable washing and drying functions. In the Luna Bath is an Archimedes Bath lift, giving maximum support and comfort while bathing. Alternatively, a traversing overhead tracking
hoist system from Liko is shown for transferring safely into a bath and on/off the toilet.
There was a huge amount of stands with latest models of all types of wheelchairs. Cyclone Mobility showcased an affordable lightweight wheelchair, called Alpha. PDG Mobility are a 2008 winner of the Medical Design Excellence Award. PDG Mobility specialise in tilt-in space wheelchairs. They were exhibiting as well as introducing the new Fuze T50 wheelchair. PDG Mobility are a Canadian company.
The New Product Showcase stand, presented and demonstrated the latest new products. From pressure chairs, bathing chairs, and childrenâs trikes. There was something for everyone to see and try.
The highlight of my day, was watching a demonstration by Canine Partners. Canine Partners, launched in 1991, is an assistance dog charity. Dogs are trained to enrich the lives of physically disabled people, by helping with every day tasks. At Naidex, three Labrador Retrievers demonstrated what they are trained to do. During the demonstration, each dog opened a washing machine and remove washed clothes, opened and closed a cupboard, tugged a sleeve to remove a coat from a person sitting in wheelchair, place a purse on a counter for a cashier to take money in a shop and pick up dropped items. All the dogs were very happy, as they regard their work as fun and games. This charity receives no government funding for their much needed work, so relies on donations and fundraising events.
Labels: Access
13 July 2008
Stockton Castle
The Scottish forces finally captured Stockton castle in 1644 and it was garrisoned by them until 1646. At the end of the Civil War the castle was destroyed on the orders of Oliver Cromwell and only the castle barn was left standing. Sadly this barn was demolished in the nineteenth century and today nothing remains of the old castle of Stockton on Tees;
"Old Noll in his day out of pious concern.
The castle demolished sold all but the barn."
The site of Stockton castle is now occupied by a prominent hotel its former presence indicated by Tower Street and the Castle Shopping centre. Some of the stonework from the old castle was incorporated into Stockton's Green Dragon Yard, just off the High Street.
Labels: Stockton-on-Tees
Around Stockton High Street 2004
Labels: Stockton-on-Tees
ÂŁ3.5m Tees Barrage watersports plan a step closer
The Stockton Middlesbrough Initiative is calling on people to give their views on initial designs for the ÂŁ3.5m project ready for a planning application to be submitted.
The improvements involve redesigning the main course, building a second shorter course and installing four massive Archimedes Screws to create guaranteed conditions for canoeists, rafters and other white water sports activities.
The 12m long by 3m diameter environmentally-friendly screws will also use excess river water to generate electricity, making the course sustainable in energy terms.
Fred Hartley, senior projects manager from British Waterways, responsible for the upgrade, said: âThis is not only a fascinating and innovative piece of engineering it will also result in a truly world class facility for the Tees Valley.â
British Waterways are seeking comments and support from local people and organisations on the designs. Discussions are also underway with current course users, organisations and businesses along the river to ensure details of the scheme meet everyone's aspirations.
Councillor Bob Cook, Stockton Council's Cabinet member for regeneration and transport, said: âThe River Tees brings Stockton and Middlesbrough together. It already has a range of high quality sports and recreational facilities. The new white water course will be a real asset for the region and indeed be of national importance.â
As well as being used as a training camp for Olympic competitors, an upgrade would enable the site to bring some of the biggest watersports events to the Tees both before and after Londonâs 2012 Games.
Middlesbrough Deputy Mayor, Councillor Bob Kerr said: âThese upgrades will make the white water course the best of its kind in the UK. Facilities at the barrage are already an enormous asset to both Stockton and Middlesbrough and the wider Tees Valley, and will continue to be a major attraction for visitors from around the country and further afield.â
Major funding bids have been made to regional development agency One NorthEast and Sport England for nearly ÂŁ3m. Together with contributions from British Waterways and the two local authorities, the ÂŁ3.5m upgrade will be able to proceed.
Subject to the bids being approved the scheme should be able to start in November and finish by summer 2009.
An exhibition of the designs will be held on Friday from 11am-5pm at the Four Seasons, Tees Barrage, Stockton.
Labels: Sports, Stockton-on-Tees
Council backs plans to restore building
Stockton Borough Council's cabinet has backed plans to return the 1825 Shambles building in the centre of the town's High Street to its old use as an indoor market selling fresh produce.
The authority has agreed to borrow ÂŁ180,000 to get the scheme under way, in addition to ÂŁ91,000 already earmarked for the project.
Officials believe the revamped Grade II listed building will attract high-quality, specialist and niche food retailers selling organic and Fairtrade goods and local produce.
The Shambles used to be a focal point of the town centre, but market traders moved into the Spencer Hall, part of the Castlegate shopping mall, in the 1970s.
The Shambles was redeveloped with small kiosk units which are now too small for many types of business and no longer suitable for fresh produce.
Sue Burgess, town centre and markets service manager for Stockton, said the new-look Shambles will complement the Castlegate centre on one side and the Wellington Square shopping precinct on the other.
She predicted: "It will be as much a destination as a place to shop and I think it will increase the footfall in the High Street. I think its effect will be to give people more reason to come in and use this area of the High Street.
"We have been talking to a lot of producers interested in moving into the Shambles."
Most existing tenants of the Shambles were last year given six months notice to leave. The notice period ends this month. Three will continue to trade in the building.
Bainbridge Carpets will be the last to leave. A spokeswoman for the firm, which has been trading in the Shambles for the past 25 years, said: "We are out and there is nothing we can do about it. The people of Stockton are not pleased, but there is nothing to be done. We are just sick and have had enough."
Labels: Stockton-on-Tees
Proms flies the flag for Teesside
The event was named as the Best Event Tees Valley at the Journal Culture Awards ceremony held in Newcastle.
The councilâs cultural services team and Suzannah Clarke, chairman of BBC Tees Proms in the Park Steering Group, led a multi-agency group of partner organisations that staged the Proms in the Park event last September.
A crowd of 5,500 people gathered in Middlesbroughâs Centre Square to take in the sights and sounds of international musicians and regional artists performing live.
The event was covered by national and international TV.
BBC Proms in the Park was up against two other Tees Valley events for the award â the opening night of Middlesbroughâs mima (Middlesbrough Institute of Modern Art) and Stockton Riverside Fringe Festival.
Dave Budd, Middlesbrough Councilâs executive councillor for regeneration, said: âThis award is important recognition that we can attract the very best.
âIt was a remarkable coup to bring BBC Proms in the Park to the town and a great way to mark the first year of Centre Square.â
The councilâs cultural services development manager, Juliet Farrar, added: âThis award is recognition for all the partner agencies and colleagues who worked so hard to make the project such a success â staging the Proms was a great example of partnership working in Tees Valley.
âWe intend to build on this success and our events programme for 2008 is already under way.â
Labels: Stockton-on-Tees
Museum Hits the 3.7 million jackpot
ÂŁ6.6M Refurb Planned for Preston Hall Museum, Stockton
The Heritage Lottery Fund (HLF) has shown its support for a major facelift planned for Preston Hall Museum, Stockton-on-Tees, with an earmarked grant of ÂŁ3.7million.
Housed in an 1825 mansion house, the popular museum has proposed a massive project to preserve its physical structure and overhaul its displays to make the most of its significant historical collections. The overall cost has been estimated at more than ÂŁ6million, which will also be contributed to by Stockton-on-Tees Borough Council.
The grand building is Grade II listed, and was largely remodelled and shaped in the 19th century by its then owner Robert Ropner, a local businessman and shipbuilder. It was acquired by the council in the 1940s and turned into a museum in 1953.
Plans include safeguarding the fabric of the building, remodelling the interior and providing a host of new facilities and access to collections.
âFollowing detailed visitor focus groups and feedback, we are really excited to be working on a plan for bringing Preston Hall firmly into the 21st century using the latest in curatorial techniques such as live displays and interactive events,â said Jane Hubbard, Museums Service Manager.
âWe are looking at a whole range of new exhibition topics to inform, educate and enthral our visitors from shipbuilding to the history of social and domestic life, the Stockton and Darlington Railway to an appraisal of local heroes.â
The hall in 1900. Courtesy Stockton-on-Tees Borough Council
The museum houses a massive collection of some 65,000 objects, from armour and militaria to a reconstruction of a Victorian street and fine art. The art collection includes the famous Georges de la Tour painting, The Dice Players (one of only two of the 17th century painter's works in the UK), and Mustering the Warrior Angels by JMW Turner.
It is set in large grounds where a track bed from the original Stockton to Darlington Railway survives. All these things will be brought to life not only with new displays but also an engaging programme of live interpretation and activities, including costumed actors in the Victorian street and traditional craftspeople giving visitors a taste of the past.
The context of the hall and its estate will also be given attention in the new styled museum, from aspects of social history to household economy and staffing in the Victorian era.
âWe are delighted to be able to support Preston Hall,â said Dr Keith Bartlett, regional manager for the HLF in the North East. âNot only is it a much-loved museum in Stockton but it is a significant heritage landmark in the North East, and the home for collections of national importance. The support of the Heritage Lottery Fund will ensure that the building and its collections can be enjoyed by everyone as they learn about their past for many years to come.â
The HLF grant is a âStage One Passâ, meaning that the money has been earmarked by the HLF for the project, but is not yet guaranteed. Stage Two involves a more detailed application to be developed to secure the grant.
Labels: Access, Stockton-on-Tees
The Famous Silver Swan
The swan, which is life size, is a clockwork driven device that includes a music box. The swan sits in a "stream" that is made of glass rods and is surrounded by silver leaves. Small silver fish can be seen "swimming" in the stream.
When the clockwork is wound the music box plays and the glass rods rotate giving the illusion of flowing water. The swan turns its head from side to side and also preens itself. After a few moments the swan notices the swimming fish and bends down to catch and eat one. The swans head then returns to the upright position and the performance, which has lasted about 40 seconds, is over. To help preserve the mechanism the swan is only operated twice a day.
It is believed that the mechanism was designed by John Joseph Merlin (1735-1803) and the first recorded owner of the swan was James Cox.
The swan was described in a 1773 United Kingdom Act of Parliament as being 3 feet (0.91 m) in diameter and 18 feet (5.49 m) high. This would seem to indicate that at one time there was more to the swan than remains today as it is no longer that high. It is said that there was originally a waterfall behind the swan, which was stolen while it was on tour.
It is known that the swan was sold several times and was shown at the World's Fair (Exposition Universelle (1867) held in Paris, France. The United States novelist Mark Twain observed the swan and recorded his observation in a chapter of the Innocents Abroad.
The swan was purchased by John Bowes in 1872 for the museum where it currently resides. The Bowes Museum believes that it is their most well known artifact, and it the basis of the museum's logo.
It should be noted that swans do not eat fish.
Bowes Museum
The museum contains an El Greco, paintings by Goya, Canaletto, Boucher, Fragonard and a sizable collection of decorative art, ceramics, textiles, tapestries, clocks and costumes, as well as older items from local history. A great attraction is the 18th century Silver Swan automaton, which periodically preens itself, looks round and appears to catch and swallow a fish.
Bowes Museum was purpose-built as a public art gallery for John Bowes, the illegitimate son of the Earl of Strathmore, and his wife Joséphine Benoßte, Countess of Montalbo, who both died before it opened in 1892.
It was designed by the French architect Jules Pellechet in a grand French style within landscaped gardens. The building was described by Nikolaus Pevsner as "... big bold and incongruous, looking exactly like the town hall of a major provincial town in France. In scale it is just as gloriously inappropriate for the town to which it belongs (and which it gives some international fame) as in style".
Beamish, The North of England Open Air Museum
Beamishâs guiding principle is to show what life was like in urbanised North East England at the climax of industrialisation in the early 20th century â much of the restoration and interpretation is specific to 1913 â together with portions of countryside under influence of the Industrial Revolution in 1825. On its 300 acre (120 hectare) estate it utilises a mixture of translocated, original and replica buildings, a huge collection of artifacts, working vehicles and equipment, costumed interpreters, and livestock.
Beamish, The North of England Open Air Museum
High Force
High Force is a waterfall on the River Tees, near Middleton-in-Teesdale, Tees Valley, England. Despite popular belief, it is not, at 20 metres (70 feet), the highest waterfall in England: Cautley Spout, in Cumbria's Howgill Fells, is almost 180 metres (600 feet) high; and Hardraw Force, in North Yorkshire, has an unbroken drop of 30 metres (100 feet).
High Force is, however, undeniably stunning, with the whole of the River Tees plunging over a precipice in two stages. In former times flooding created two separate falls but after the completion of Cow Green Reservoir in the upper dale this seldom happens now. Also, in harsh winters the falls would freeze, creating cathedral-like ice formations. Again, this very rarely happens nowadays, perhaps due to climate change.
High Force is formed where the River Tees crosses the Whin Sill - the rock system followed by Hadrian's Wall. The waterfall itself consists of two different types of rock. The upper band is made up of whinstone, a hard rock which the waterfall takes a lot of time to erode. The lower section is made up of carboniferous limestone, a softer rock which is more easily worn away by the waterfall. The wearing away of rock means that the waterfall is slowly moving upstream, leaving a narrow, deep gorge in front of it. The length of the gorge is currently about 700 metres. The bedload (rocks that the river is carrying) is mainly composed of large boulders, which are rolled along the river bed. Upstream of the waterfall, the river is narrow, but afterwards, it widens and begins to meander.
Passionate about Durham
Bamborough Castle

Bamburgh Castle is an imposing castle located on the coast at Bamburgh in Northumberland, England (grid reference NU184350). It is a Grade I listed building
Built on a basalt outcrop, the castle was known to the native Britons as Din Guardi and had been the capital of the British Kingdom of Bryneich from the realm's foundation in c.420 until 547, the year of the first written reference to the castle. In that year the citadel was captured by the Anglo-Saxon ruler Ida of Bernicia and became Ida's seat. It was briefly retaken by the Britons from his son Hussa during the war of 590 before being relieved later that same year.
His grandson ĂðelfriĂŸ passed it on to his wife Bebba, from which the early name Bebbanburgh was derived. The Vikings destroyed the original fortification in 993.
The Normans built a new castle on the site, which forms the core of the present castle. William II unsuccessfully besieged it in 1095 during a revolt supported by its owner, Robert de Mowbray, Earl of Northumberland. After Robert was captured, his wife continued the defence until coerced to surrender by the king's threat to blind her husband.
Bamburgh then became the property of the reigning English monarch. Henry II probably built the keep. As an important English outpost, the castle was the target of occasional raids from Scotland. In 1464 during the Wars of the Roses, it became the first castle in England to be defeated by artillery, at the end of a nine-month long siege by Richard Neville, 16th Earl of Warwick.
The Forster family of Northumberland provided the Crown with twelve successive governors of the castle for some 400 years until the Crown granted ownership to Sir John Forster. The Forster family retained ownership until Sir William Forster (d. 1700) was posthumously declared bankrupt and his estates, including the castle, were sold to Lord Crew, Bishop of Durham ( husband of his sister Dorothy) under an Act of Parliament to settle the debts.
The castle deteriorated but was restored by various owners during the 18th and 19th centuries. It was finally bought by the Victorian industrialist William Armstrong, who completed the restoration.
During the Second World War, the Royal Navy corvette HMS Bamborough Castle was named after it.
I loved it here, I remember Dad asking me in the summer holidays where I wanted to go for a day out, and I said to a castle, and this is where we came, I loved it, it was very hard going in my chair but Mum and Dad where determined to let me see as much as we could, even if this meant carrying me up the stairs.
Labels: holiday
Alnwick Castle - Home of Harry Potter
Stockton butchery couple retire after 38 years
Fred and Norma Stubbs have decided to call it a day and close Ramsgate Butchers, just off the High Street, in July.
The butchers shop originally opened in 1935 - the year Fred was born - under the name of Harry Goodwill.
The Stubbs family took it over in 1970 and have been keeping local shoppers supplied ever since.
The couple are now planning to enjoy their retirement and spend more time with their children and four grandchildren - in Billingham and the sunnier climes of Sri Lanka.
Fred, 72, said he hoped their Ramsgate shop would be taken on by someone else as a butcher.
âIt would be an awful shame for it to close,â he said. âThere arenât many family butchers left in Stockton town centre.
âWhen I came here in 1970 there must have been 30 within a quarter of a mile.
âItâs the supermarkets - people want everything in one shop these days. But youâre not getting the same quality or same service in supermarkets.
âThere will always be a place for the small family butcher.â
Fred added: âI donât know what Iâm going to do with my time really. We have a big garden, and we want to spend more time with the grandkids.â
The couple, from Billingham, recently returned from visiting their son Chris and their two grandchildren in Sri Lanka. Their other son, Derek, who until recently helped run Ramsgate Butchers, also has two daughters.
Sue Burgess, Stockton town centre manager, presented Fred and Norma, 71, with a certificate in recognition of long service to the town centre.
She said: âWhile we are sad to be losing this local independent business from the town centre, we are pleased to have the opportunity to recognise the contribution they have made.â
Labels: Stockton-on-Tees
SIRF Carnival at Stockton
Labels: Stockton-on-Tees
The Angel of the North
As the name suggests, it is a steel sculpture of an angel, standing 66 feet (20 metres) tall, with wings measuring 178 feet (54 metres) across â making it wider than the Statue of Liberty's height. The wings themselves are not planar, but are angled 3.5 degrees forward, which Gormley has said aims to create "a sense of embrace". It stands on a hill overlooking the A1 road and the A167 road into Tyneside and the East Coast Main Line rail route. Work began on the project in 1994, the total cost coming to ÂŁ1m. Most of the project funding was provided by the National Lottery.
Due to its exposed location, the sculpture has to withstand winds of over 100 mph (160 km/h). Thus, 150 metric tonnes (165 tons) of concrete were used to create foundations which anchor the sculpture to rock 20 metres (66 ft) below.
The sculpture itself was created offsite at Hartlepool Steel Fabrications Ltd in three parts â with the body weighing 100 metric tonnes (110 tons), and two wings weighing 50 metric tonnes (55 tons) each â then brought to its site by road. It took seven hours for the body to be transported from its construction site in Hartlepool, up the A19 to the site.
Construction work on the Angel was finished in 16th February 1998. At first, Angel of the North aroused some controversy locally â one local councillor, Martin Callanan, was especially strong in his opposition â and in the UK newspapers. It has now come to be considered by some as a landmark for the North East of England and is one of the 12 official 'Icons of England' - albeit not of the United Kingdom.
My Dad came from Newcastle and didn't get to see the Angel of the North I wonder what he would of thought of it, knowing him he would of like it
The Tyne Bridge

Dad's family are from Newcastle and when we used to go and visit Grandma and Grandad I always used to watch out for the bridge, because I knew were where nearly there. On the way I always used to say "are we there yet" as kids do and Mum used to say can you see the bridge yet ?
Labels: Access
Newcastle
The city was founded in Roman times under the name Pons Aelius. The medieval Latin name is Novum Castrum super Tynum (Newcastle upon Tyne).
The city is the 20th most populous in England; the larger Tyneside conurbation, of which Newcastle forms part, is the 6th most populous conurbation in the United Kingdom. Newcastle is a member of the English Core Cities Group and (with Gateshead) the Eurocities network of European cities.
Newcastle and the surrounding areas offer lots of activities and sights for locals and tourists alike. Shopping facilities in the city centre and the locality are superb. Being a compact city, you can get everything you want at places all within short walking distances. Better still, prices are generally cheaper that other big cities in the UK. Moreover, all the major high-street names are represented on Northumberland Street and in Eldon Square, together with a large number of other department stores and smaller specialist outlets, stocking more designer brands than you can shake a stick at. People come from all over the UK and even from the Continent to shop here.
The Historic Town of Whitby
I have visited Whitby many times over the years and although I haven't been recently I enjoy going there, especially for the fish and chips, you can't beat the fish and chips from the famous the Magpie Cafe. People queue for miles just to eat fish and chips in there. I have been carried many times up those steps as a child so we could go in and sit in the cafe.Whitby is a historic town in North Yorkshire on the north-east coast of England. Nowadays it is a fishing port and tourist destination. It is situated 47 miles from York, at the mouth of the River Esk and spreads up the steep sides of the narrow valley carved out by the river's course. At this point the coast curves round, so the town faces more north than east.
The town is served by Whitby railway station which forms the terminus of the Esk Valley Line from Middlesbrough, formerly the northern terminus of the Whitby, Pickering and York line. Whitby is also served by the Yorkshire Coastliner bus line, which can take travellers to and from Leeds, Tadcaster, York, Scarborough, Bridlington, Pickering, Malton and many more towns in Yorkshire.
West Cliff has its own landmarks â a statue of Captain James Cook, who sailed from the town, and a whalebone arch, commemorating the once large whaling industry. There is also a new science museum â Whitby Wizard. The whalebone arch is the second to stand on this spot; the original (a larger version) is now preserved in Whitby Archives Heritage Centre. By the inner harbour, next to the tourist information office, there is also a statue commemorating William Scoresby, inventor of the crow's nest.
One unusual feature of Whitby is the Dracula Museum - a large portion of Bram Stoker's famous novel was set in Whitby, describing Dracula's arrival in Britain on a ship washed ashore in the harbour, and how Lucy watched from the churchyard as the sun set over the nearby headland of Kettleness, but did not know how many steps she climbed to get there. Stoker's story incorporated various pieces of Whitby folklore, including the beaching of the Russian ship Dmitri, which became the basis of Demeter in the book
The Transporter Bridge
The bridge was built in 1911 under a 1907 Act of Parliament. The opening ceremony on the 7 October 1911 was performed by Prince Arthur of Connaught. The Middlesbrough Transporter Bridge reflects the dynamic industrial heritage of the area.
Teesside has a long tradition of bridge building. Many of the world's greatest bridges including the nearby Tees Newport Bridge, the Tyne Bridge and the famous Sydney Harbour Bridge in Australia were designed and constructed from Dorman Long steel.
However, the Middlesbrough Transporter Bridge at 850 feet (260 metres) long and 225 feet (69 metres) high at the tallest point, is the largest working bridge of its kind in the world. The distance between the two towers is 580 feet (177 metres).
In December 1993, the bridge was awarded the Institution of Mechanical Engineers' highest honour, The Heritage Plaque, for engineering excellence, in recognition of the Council's efforts in keeping the bridge in good working order. Its historical importance was also recognised in 1985 by its listing as a Grade II* Listed Building and its prominence as a local landmark was further enhanced in 1993 by the installation of flood lights that operate during the winter months.
It has featured in films and TV programmes including Billy Elliot, Auf Wiedersehen, Pet, The Fast Show, Spender and Steel River Blues. In the millennium celebrations of 2000, fireworks were fired from its length.
In the storyline of Auf Wiedersehen Pet (series 3, 2002) the bridge was dismantled to be sold to and re-erected in the USA. A public outcry ensued from people who believed that the bridge was really being pulled down. The BBC was required to put a disclaimer on the end of the last episode of the series stating that 'The Transporter Bridge remains in Middlesbrough'.
Newport Bridge
With the planned construction of the Tees Barrage heavy river traffic all but ceased and the decision was taken to seal the lifting span. The bridge was ceremoniously raised and lowered for the last time in an informal ceremony on the 18th November 1990, this time with scores of people enjoying the ride. The span was subsequently bolted down.
Middlesbrough Football Club
The team plays at the Riverside Stadium in Middlesbrough, North-East England. The current manager is Gareth Southgate who was appointed on June 7, 2006. The chairman of the club is Steve Gibson. The official historian/statistician is Harry Glasper. The official mascot is Roary the Lion, who is played by Andrew Morgan of Kirklevington.
Wilfred ("Wilf") James Mannion (16 May 1918 - 14 April 2000) was an English professional football player. Capped 26 times by England, he is regarded as one of Middlesbrough's greatest ever players, and along with George Hardwick, he is commemorated by a statue outside the Riverside Stadium in Middlesbrough.
Born in South Bank, a hardscrabble community within Middlesbrough proper, he played in local leagues before he signed professional forms for Middlesbrough on 17 September 1936 at the age of 18.
During the Second World War, Mannion served with the army and was evacuated from Dunkirk. He later served in the Middle East and Italy but was invalided out of the forces with shellshock. He played four times for England in wartime internationals that did not carry full international status and he finally won his first full international cap when selected to play for England's opening post war fixture against Northern Ireland in Belfast on September 28, 1946, scoring a hat-trick.
Mannion had stunned Middlesbrough fans in 1947 when it seemed he was set to join lowly Oldham Athletic in the Football League Third Division, Middlesbrough then being in the prestigious First Division. The Lancashire club could not afford the prohibitive price tag Middlesbrough placed on him, and he was soon back at Ayresome Park. For Mannion this was a defeat, as he was attempting to sidestep the league's maximum wage of 10 pounds per week which was in force at the time[1]. His plan had been to play and run a business at the same time, an option not available at a top rank club. His dispute with Middlesbrough over the transfer ultimately led him to refuse to re-sign his contract with the club and after jeopardising his England career, ultimately he continued to play for the club. Mannion played his final game for England on October 3, 1951 against France. He had collected 26 caps, scoring 11 times.
After initially retiring as a player in 1954, Mannion joined Hull City on 24 December of that year and decided to play on for another season. However, in a series of articles for newspapers he made several highly contentious statements, including allegations of illegal payments. Challenged to back up these by the Football League, he was banned for life and never played league football again[2]. In 1956 he joined Cambridge United, then in the Eastern Counties League. Just before the end of that season the Football League announced that it was lifting Mannion's life ban, but he decided to stay at Cambridge for a further season. He retired in 1958, and after a spell running a pub in Stevenage returned to Teesside to work for ICI.
He had a joint testimonial match with George Hardwick on May 17, 1983. Hardwick is also commemorated by a statue, facing Mannion across a ceremonial brick walk behind the old iron gates from Ayresome Park, where both played.
On April 14, 2000, Wilf Mannion died in hospital, at the age of 81. Many Middlesbrough fans were greatly saddened at the passing of one of their heroes. He was inducted into the English Football Hall of Fame in 2004 in recognition of his impact on the English league.
I had the pleasure of a guided tour of the grounds by one of the stadium staff after I had attended a conference there for work. It's only when you go out into the grounds the vastness of it all.
Middlesbrough FC also support disabled people with their Soccability Club which provides a dedicated disabled football programme which gives members the opportunity to develop skills and the chance to compete in local leagues, tournaments and festivals, all in a friendly and fun setting.
The Famous Mouseman

He was part of the Arts and Crafts movement which was a rebuff to the automation and mechanisation of a craftmans work, that was beginning in the late 19th Century - the birth of mass production. Other people who were key to this include John Ruskin, William Morris & Thomas Carlyle. More specific to furniture making in this genre and era include Stanley Webb Davies of Windermere.
The workshop, now being run by his descendants, includes a showroom and visitors' centre, and is located beside the Parish Church, which contains "Mouseman" pews, fittings and other furniture. The company is now known as "Robert Thompson's Craftsmen Ltd - The Mouseman of Kilburn"
Labels: Stockton-on-Tees
Stockton always something going on
Labels: Stockton-on-Tees
Stockton International Riverside Festival
Labels: Stockton-on-Tees
Ropner Park
Sir (Emil Hugh Oscar) Robert Ropner, 1st Baronet (16 December 1838 - 26 February 1924), was a British shipbuilder, shipowner, and Conservative Member of Parliament.
Ropner was the son of Henry Ropner, of Magdeburg, Prussia. He became interested in seafaring from his readings, before he had even seen the sea. He emigrated to England as a stowaway. The roughness of the short passage cured him of a desire to be a seafarer, but did not eliminate his interest in shipping.
He settled in England and worked for a coal export concern. Rather than continuing to charter colliers, he began to purchase them. In a time of rising industrialization and increasing demand for coal, the trade grew quickly.
In 1888 Ropner acquired a shipyard at Stockton-on-Tees in Yorkshire. Ropner established a successful shipbuilding firm, which built many trunk deck ships. No longer limited to hauling coal, Ropner also established a company to operate tramp steamers. Although the shipyard went into liquidation soon after what was then known as the Great War,[3] the shipping company continued in shipping trades through both World Wars, despite heavy wartime losses of vessels.[2]
From 1900 to 1910 Ropner represented the constituency of Stockton-on-Tees in the House of Commons. In 1904 he was created Baronet of Preston Hall, Stockton-on-Tees, in the County Palatine of Durham, and of Skutterskelfe Hall, Hutton Rudby, in the North Riding of York.
Ropner died February 1924, aged 85, and was succeeded in the baronetcy by his eldest son John. His third son William Ropner was the father of the Conservative politician Sir Leonard Ropner, 1st Baronet of Thorp Perrow.
Labels: Stockton-on-Tees
Ropner Park
Sir (Emil Hugh Oscar) Robert Ropner, 1st Baronet (16 December 1838 - 26 February 1924), was a British shipbuilder, shipowner, and Conservative Member of Parliament.
Ropner was the son of Henry Ropner, of Magdeburg, Prussia. He became interested in seafaring from his readings, before he had even seen the sea. He emigrated to England as a stowaway. The roughness of the short passage cured him of a desire to be a seafarer, but did not eliminate his interest in shipping.
He settled in England and worked for a coal export concern. Rather than continuing to charter colliers, he began to purchase them. In a time of rising industrialization and increasing demand for coal, the trade grew quickly.
In 1888 Ropner acquired a shipyard at Stockton-on-Tees in Yorkshire. Ropner established a successful shipbuilding firm, which built many trunk deck ships. No longer limited to hauling coal, Ropner also established a company to operate tramp steamers. Although the shipyard went into liquidation soon after what was then known as the Great War,[3] the shipping company continued in shipping trades through both World Wars, despite heavy wartime losses of vessels.[2]
From 1900 to 1910 Ropner represented the constituency of Stockton-on-Tees in the House of Commons. In 1904 he was created Baronet of Preston Hall, Stockton-on-Tees, in the County Palatine of Durham, and of Skutterskelfe Hall, Hutton Rudby, in the North Riding of York.
Ropner died February 1924, aged 85, and was succeeded in the baronetcy by his eldest son John. His third son William Ropner was the father of the Conservative politician Sir Leonard Ropner, 1st Baronet of Thorp Perrow.
Labels: Stockton-on-Tees
Preston Hall Museum

I always like to visit the Hall part which is a museum, includes a recreated period street of the 1890s, period rooms, an armoury and a toy collection. It also includes a famous picture named the dice players. We at Stockton house the most famous painting The Dice players, it is on display in a specially tempature controlled room, and for some reason, whenever I went to go and look at it as a child, it used to scare me, maybe it's because the room was dark and cold.
'The Dice Players' by the French Artist, Georges De La Tour (1593-1652)
I used to enjoy looking at all the different exhits I always enjoyed history at school, and visiting here made it feel more real, more than just reading it in a book.
Once I had visited all the rooms that I could accessibility wise, we always went through into the period street, now that was just great to see all the old shop fronts and some of the shops are open so you can go inside.
This is in he grounds of Preston Park, this is a great place to visit. I have been in there a few times, it's great if you like heat, the first time I went in there I thought I was going to pass out!!!. Mind you the day I went with my cousin it was a hot sunny day, at the time I was staying with my Aunty for the whole week, while my Mum and Dad went on holiday to Jersey, this was there first holiday without me and vice versa. We went out for the day starting with Butterfly World and then Seaton Crew. It was really hot in there and everywhere I looked there were just butterflys everywhere, I was in my element, they were amazing, and there was a huge moth and it landed on my cousin's hand and she tried to get it to move onto me, but me being me jumped and it flew away.
Labels: Access, Stockton-on-Tees
The River Tees
In the earliest part of its course it forms the boundary between the historic counties of Westmorland and Durham. The head of the valley, of which the upper portion is known as Teesdale, has a desolate grandeur; the hills, exceeding 2500 feet in height at some points, consist of bleak moorland. This area is part of the North Pennine Area of Outstanding Natural Beauty, recently designated a geological Europark, the first in the UK.
A succession of falls or rapids, where the river traverses a hard series of black basaltic rocks, is called "Cauldron Snout". From a point immediately below this to its mouth, the Tees forms the boundary between the traditional counties of Durham and Yorkshire almost without a break, although since 1974 much of it lies wholly in Durham. The dale becomes bolder below Cauldron Snout, and trees appear, contrasting with the broken rocks where the water dashes over High Force. High force is a big waterfall but its biggest problem is that it is extremely powerfall, with a huge current.
The course of the valley until here has been generally east-southeast, but it now turns northeast and, nearing the sea, becomes an important commercial waterway, having on its banks the ports of Stockton-on-Tees and Middlesbrough. It passes through the Tees Barrage between Stockton-on-Tees and Middlesbrough, turning tidal downstream from the barrage.
The Teeside White Water Centre is a part of the Tees Barrage and is an artificial whitewater course, located between Stockton-on-Tees and Middlesbrough.
Labels: Stockton-on-Tees
HM Bank Endeavour
HMB Endeavour was a small 18th century British sailing ship, famous for being the vessel commanded by Lt. (later Captain) James Cook, on his first voyage of discovery to the Pacific Ocean.His Majesty's Bark Endeavour was originally a merchant collier named Earl of Pembroke after Henry Herbert, 10th Earl of Pembroke.
Her construction was completed by early 1768 at Whitby, North Yorkshire. She was ship-rigged, and sturdily built with a capacious hold. Despite not being very fast, her flat-bottomed hull was well-suited to sailing in shallow waters and more important for her proposed use: she was, like other colliers of the north-east coast of England, designed to be beached. Her overall length was 32.3 m (keel 27.7 m), beam 8.9 m, and she weighed 400 tonnes (397 tons).
The voyage departed Plymouth on August 26, 1768, and took them to the Madeira Islands, along the west coast of Africa and across the Atlantic to South America, arriving in Rio de Janeiro on November 13, 1768.
The next leg rounded Cape Horn into the South Pacific and on to Tahiti, where she remained for the next three months while preparations were made for observing the transit of Venus.Her ostensible mission now completed, she continued with her "unannounced" tasks of charting the Southern Hemisphere. The Endeavour sailed from Tahiti to New Zealand, where she spent the next six months surveying and mapping the coast under constant harassment from the MÄori population. From New Zealand she moved west to the coast of Australia, sighting land on April 19, 1770. On April 29, Cook and crew made their first landfall on the continent, at a place now known as Kurnell. At first Cook bestowed the name Stingaree (Stingray) Bay to the inlet after the many such creatures found there; this was later changed to Botanist Bay and finally Botany Bay after the unique specimens retrieved by the botanists Joseph Banks, Daniel Solander and Herman Spöring.
Queens Campus
I remember there was a special evening organised by the University for all of us to get presented with our certificates. I thoughly enjoyed that evening, not only because I had acheived but also because my family were over here from Canada and they came to the evening. I think they were proud and they also thought the building and settings were amazing. My Aunty is passionate about Stockton purely because she lived here for many years before moving to Canada. I know she loves to come back as much as she can, and we always send her things about the area
Labels: Stockton-on-Tees
Durham University
Durham is a collegiate university, with its main functions divided between the central departments of the University and 16 colleges. In general, the departments perform research and provide centralised lectures to students, while the colleges are responsible for the domestic arrangements and welfare of undergraduate students, graduate students, post-doctoral researches and some University staff. Colleges decide which students they are to admit, and appoint their own fellows (senior members). In Durham, "the university" often refers to the University as opposed to the colleges.
In 1992 a joint venture between the University and the University of Teesside saw the Joint University College on Teesside of the Universities of Durham and Teesside (JUCOT) established at Stockton-on-Tees, 23 miles to the south of Durham. This was initially intended to grant joint degrees validated by both institutions (BAs and BScs). However, Teesside, which had only become a university in 1992, had difficulties in taking on its responsibilities for the college and Durham took full control of the new college in 1994.
A programme of integration with Durham began, leading to the college becoming University College, Stockton (UCS) in 1996 â a college of the University of Durham and the only college with teaching responsibilities. Further integration lead to the campus being renamed the University of Durham, Stockton Campus (UDSC) in 1998, removing teaching responsibilities from the College. In 2001, two new colleges, John Snow and George Stephenson (after the physician and the engineer) were established at Stockton, replacing UCS, and the new medical school (which operates in association with the University of Newcastle upon Tyne) took in its first students â the first medics to join Durham since 1963. In 2002, her golden jubilee year, the Queen granted the title "Queen's Campus" to the Stockton site.
As of 2005 Queen's Campus, Stockton accounts for around 18% of the total university student population. This is likely to increase in coming years thanks to future expansion plans.
A curious fact about Queen's Campus, Stockton, is that it is located on the south bank of the River Tees within Thornaby-on-Tees. For centuries the Tees formed the historical division between the historic counties of Yorkshire and Durham, with Thornaby-On-Tees being one of the most northern towns in Yorkshire. With the creation of the county borough of Teesside in 1968 areas both north and south of the river were removed from their historic counties. Teesside itself was engulfed into the County of Cleveland in 1974. Yet another local government change in 1996 saw the breakup of the county of Cleveland into the current four unitary authorities of Middlesbrough, Hartlepool, Redcar and Cleveland & Stockton-On-Tees. With this latest reorganisation Thornaby-On-Tees became part of the borough of Stockton-On-Tees, however the town of Stockton-On-Tees itself is located on the north ('County Durham') side of the river. The upshot of all this is that a significant proportion of Durham University is actually located within the ceremonial county of North Yorkshire, rather than County Durham. Adding to the confusion, plans exist to expand the campus onto the north bank of the River Tees, splitting the campus between the two historic counties.
Labels: Stockton-on-Tees
Thornaby
Thornaby is said to have come into existence about AD 800 when the land was given by Halfdene, King of the Danes, to Thormod, one of his noblemen Thor-ny-by thor's new village. There are other signs of Thornaby being a much older settlement. Traces of prehistoric man have been found, the earliest being a stone axe, 8" long, dating back to the Mesolithic Period (about 3000 BC). In 1926 a dug out canoe said to date from about 1600 â 1400 BC was found in the mud under 8 feet of water opposite Thornaby High Wood. An arrow head of the Neolithic Period (about 3000 BC) was found in a garden on the Thornaby Village Green.
During the Battle of Hastings (1066) one of William the Conquerors noblemen, Robert I de Brus, marched north with a garrison of men and occupied the area of Cleveland. William gave him those lands to control including Thornaby and Middlesbrough. The then King of Denmark, Sweyn, on Sept. 9th 1069 defeated the Normans at York by killing the entire garrison of 3000 men. William swore an oath to avenge Sweyn by destroying every house and dwelling in the lands under Sweyns rule, leaving all the land in the north east of Yorkshire barren and bare.
Thornaby's first mention in the Domesday Book states:- "Robert Malet has these lands and they are waste." It appears remained undeveloped until the early 19 th. century as "Thurnaby waaste" is mentioned in a poem by Tennyson called "The Northern Farmer.".[citation needed]Over the centuries there have been a number of different spellings of the name Thornaby including Turmozbi, Thormozbi and Tormozbia. The form Thornaby first appears in 1665 and refers to old Thornaby village near the River Tees. In the nineteenth century old Thornaby, centred on St Peters Church and the old village green was gradually overshadowed by the burgeoning town of South Stockton. South Stockton was on the Yorkshire side of the Tees opposite Stockton on Tees. South Stockton, became the site of a pottery in 1825 and quickly grew with the establishment of shipbuilding and engineering in the area. On 6th October 1892 South Stockton and Old Thornaby merged into one to form the municipal borough of Thornaby-on-tees.
Labels: Stockton-on-Tees
Yarm
The small town hall, situated in the high street was built in 1710 by Thomas Belasyse who was Lord of the Manor. In 2007, Yarm High Street was voted the best in Britain by viewers of the BBC's Breakfast Programme. The many Georgian-style old buildings, with their red pantile roofs, fronting the high street and its cobbled parking areas add to the visual appeal of the town.The A67, which runs through the High Street, was previously classified as the A19 until a new dual carriageway was built in the 1970s - this is about 3 miles to the south of the town near the village of Crathorne When the A19 ran through the High Street, the traffic was heavily congested and very busy.
I used to enjoy visiting Morgan's Tea Room with Mum, we used to go in and have a cup of tea and a strawberry tart, I love those. We used to walk full length and I would window shop if we couldn't get my chair in. My favourite pub is the Black Bull, as a treat we all used to go there once a week and have a meal on the evening, and I can remember havig a great 18th in there.

Labels: Stockton-on-Tees
Billingham
With the declaration of the First World War, a high demand for explosives led to a massive expansion of Billingham. In 1917, Billingham was chosen to be the site of a new chemical works supplying ammonia for the war. However, the plant was completed in 1920, after the war had ended. The Brunner Mond Company took over the site, and converted it to manufacture fertilisers. In December 1926, Brunner Mond merged with three other chemical companies to form ICI, who took control of the plant. ICI began to produce plastics at Billingham in 1934.
My first job was with ICI as an Administration Trainee, I worked with the training centre for a number of months, while I gained my qualifications and then went on to my work placement. The next time I came part of Billingham so to speak when I got transferred to another Council department based over at Queensway House in the Town Centre. I have memories of lunch times in the summer sat in the square, watching the kids in the small play area. I used to enjoy going up to the upper level and going to have a Chinese meal.

In 1967, Billingham Forum was opened by HM the Queen. A sports and leisure complex, it contains a swimming pool, an ice rink, and a number of sports halls. The complex also houses the Forum Theatre. Notable personalities that have performed in the theatre include Arthur Lowe, David Jason, Penelope Keith, Timothy West, Carroll Baker, and Dame Anna Neagle. Roy Chubby Brown performed there for the first time in November 2006; his DVD for 2007 was recorded there as well. This is one of my favourite things to do in Billingham and I have seen some fantastic shows over the years and hope to see many more in the future.
Stockton has the widest High Street
One of the most recent development was the re-launch of the "Queen of the North" market. to help launch the market Council commissioned a film which marks the celebration of the past, present and future of this traditional and thriving market.
Stockton Market Queen of the North
Looking ahead we get our first glimpse of the Teesquay Millenium Bridge, Stocktonâs newest river crossing, a footbridge linking the Castlegate Centre of the High Street to Teesdale.

Labels: Stockton-on-Tees







