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Living life to the full around the world

Read about how people around the world live with Cerebral Palsy and Disability. Here you will read about our highs and lows in life,

31 July 2008

Stockton International Riverside Festival kicks off in style

A HEADY mix of acrobatics, Kung Fu warriors and breathtaking aerial work got the 21st Stockton International Riverside Festival off to a flying start.

The Flying Dragon Circus, a groundbreaking celebration of the very best of Chinese and European circus traditions, takes centre stage at the five-day festival.

East meets west, boy meets girls, and monks and punks fly in the show, which premiered in Beijing in May to great acclaim.

Promising family-friendly fun, the Flying Dragon Circus warmed up with a full rehearsal yesterday before performing to the amazed crowds in an 800-capacity tent at Stockton’s Trinity Gardens last night.

Commissioned by Stockton International Riverside Festival and partners Culture 10 and Beijing Chaoyang Intercultural Association, the show is produced by Event International and directed by Pierrot Bidon, French founder of the famous Archaos circus.

Frank Wilson, Festival artistic director, said: “With interest in Chinese sport and culture at an all time high with the imminent Olympic Games, Flying Dragon Circus is a must-see attraction.

“The exhilarating performances show the grace and dexterity of Chinese circus tradition and the truly stunning aerial skills of the British artists.”

Mr Wilson said the show did “exceptionally well” on its European premier in Newcastle earlier this month and was a “worthy highlight” for the festival.

Catch the Flying Dragon Circus every day of the festival, times are: today – 2pm and 8.30pm; tomorrow - 7.30pm; Saturday – 2pm and 7.30pm; Sunday – 2pm and 7pm. Tickets £12.50, £5 for concessions and family tickets (two adults and two children) £25.

The show features an original score performed live by Chinese musicians and Newcastle band The Baghdaddies, who also feature at the SIRF Festival Club which returns to ARC after five years.

The Club will see performances from Maybe Myrtle Turtle and local favourites the Wildcats of Kilkenny tonight, tomorrow and Saturday starting at 10.30pm.

Meanwhile catch the start of SIRF’s colourful world class street theatre throughout Stockton town centre from midday today, including giant slinkies, trampolining acrobats, hip hop dancers and break neck stiltwalking.

For information visit www.sirf.co.uk or upload your festival pictures at www.flickr.com/groups/sirf2008

Today’s line-up and locations

Trinity Green

14:00 Flying Dragon Circus

20:30 Flying Circus

Parish Church Gardens

12:00-17:15 Honey

22:00 Suma

Municipal Buildings Car Park

12:00-21:45 Winter

High Street

11:00-18:00 Camera Obscura

12:00-15:00 ChromaVan

12:00 Great Scott

12:45 Desert Island Discs

13:30 14:15 14:30 Peep

15:15 Great Scott

15:45 Le Grand Peep Show

18:00-21:00 ChromaVan

19:00 La Grosse Couture

19:30 Peep

20:00 An African Circus

20:30 Le Grand Peep Show

21:00 Trampoline Mission 3

Arc

22:30 Festival Club


Read more!

30 July 2008

Accountability

In the last few weeks, since I have written, I have learned much again about people in general and human nature. Once again, I find that this world we live in today, is very selfish. People are only out for their own selfish self, and that it is a dog-eat-dog world. The government does not recognize you. People tend to look the opposite way, or pat you on the head if you are young. If you shake or tremble they think you are drunk. And then there are those, who yes you, to your face, tell you what you want to hear, but never are they really willing to give of themselves and go the distance for you or give you a break, or lend you a kind hand.

I'm here to tell you that there is a hand full of us who have Cerebral Palsy or a learning disability who's paralyzes is very slight or mild. We are the exceptions. We will do anything, and go to ANY lengths to be accountable, responsible, ethical, earnest, and answer up to our actions, need, wants, and desires. We will put ourselves right out their on the line. We will tell people how we feel, we will be honest and truthful, and we will get slapped in the face and rejected because of it! People just don't want to own up or be accountable to US! The norm is just not that way. They want little or nothing to do with us. They want their fee's, but when you ask for yourself... well, they want you to do it for nothing!

For those of us like myself, how are we, then, suppose to make it in society? How are we truly suppose to support ourselves? How are we to get along in a world when we won't be treated as an equal? I ask you? It's getting worse and worse out there. The economy is not getting ANY better, politicians are out for their own political agenda. And, if the government doesn't care, and they keep cutting our benefits, as well as our yearly Social Security cost of living increases. By their actions, they are telling us with disabilities, that we are not important or mean anything to society. They don't care enough to recognize us, our talent, or our abilities, and they frown upon anyone who does...how is it then, that they are really giving us a so called chance. Where is the real compassion to be accountable to help those who are desperately trying to help themselves.

We try so hard to do everything possible to walk, beyond what we've known to make a new and better life for ourselves, and, yet, repeatedly, we are hit down with a sledge hammer to keep us in the same place and predicament we have known from the get go.

All I know is that I am getting a very thick coat and armour, I also know that I personally would give my right, good, arm to help someone who needed it; weather they had the money or not. I would help them feel worthy and have the self-confidence and worth in their heart and soul of succeeding.

I must be honest with all of you when I say this really hurts and breaks my heart


Read more!

Self-Determination

Ever since I can remember, I have always been self-determined. It has been a contributing partnership in my life from the very early days of my being. Where did it come from? I could not tell you- but I knew it has been all powerful, and has always been there for me. I guess you could call it an instinct, a sixth sense- It was always by my side. It has walked hand and hand with me in every situation in my life, and everything I have gone through.

It has been like a trusted servant, or a very good friend, guiding, guarding and lighting my way. It was always there when I needed to call on it; especially when I came to major turning points in my life, and I needed guidance, answers, and protection.

I somehow knew I could turn to it, and rely upon it. It never turned me away, nor did it steer me wrong! It was always there, right in the pit of my gut, right near my heart. And the times I did not listen, it made me see and become that much more aware of just how important it was to do so. I could turn to it in a split second. When I needed it the most.
I would listen very carefully to its quiet, gentle voice. And I would listen to what it was telling me to do or what road to follow. If I was patient enough, and willing enough to go through the feelings and the emotions, I would always get the answer's I was looking for or needed.

When experts or individuals told me... ahhhh sweetheart, you know that this task is too difficult for you;... or, you know you have trouble learning... I would proved them wrong. I would literally take matters into my own hands without verbally speaking or saying a word to anyone. Them telling me I could not do something would fire me up inside, made me angry, and thus, gave me the motivation I needed to prove them wrong.



These were some of my most intuitive moments. I seemed to be able to hear what they were saying, tune them out, know that, that was their opinion, and intuitively knew that they were wrong in the pit of my gut. Somehow I was able to work these feelings and emotions out, released the negative impact these words, phrases, and tapes had upon me, and turn them around to become a positive and all powerful force within myself. I would become steadfast in my thinking, and affirm what I wanted to change within myself and who I wanted to become. Thus, believing in myself when no one else did, and acting on those beliefs within myself, ultimately transformed my life.

I am so very grateful to myself, because who knows what kind of person I would have become, if I did not listen or allow myself to be the unique individual that I am.


Read more!

Scrutinized

In my life-time I have been under heavy scrutinizing because I chose to live my life on my own teams. I chose to live my life as a Normal person who has feelings, wants, needs, and desires

I have talked up for myself, been faithful to myself, and, I have been determined to be treated with dignity and respect! When employers, co-workers, organizations, or individual's rewarded those around me who were talking down, behind, and around my back, or taking credit or advantage, of a current situation for something I did. I was also wrongly scolded for being dressed inappropriately for teaching a fitness class, while being hired as a fitness instructor, too.

In each of these situations, I spoke up for myself and stood my ground. I never sold myself short. I lived by a standard of truth, honesty, integrity, and doing my job to the best of my ability and then some. I went above and beyond in all my duties, and gave a 120 % with all the goodness in my heart

Today, I know differently

And, because of this, I have been able to rise above it all. I have been accountable and responsible for all my actions and conducts. I have accomplished goals in my life, step by step that other's may have looked disapprovingly of. Because of my motivation and willingness to succeed in every area of my life, I have been insulted, scorned, made fun of, studied, and criticized to the hilt. I have been examined, and looked down upon, and grudgingly made to feel small. Moreover, I have been looked at very closely and thoroughly with peering eyes. And still, I have been looked at with such discuss, objection, and in such a hypocritical, disconcerting kind of way, that it truly hurt.

These people found careful and meticulous ways to get rid of me. They found ways for me to be the bad girl These individuals called my left arm a wing and mimic my limp and how I walk!

Why! Well, I don't really know- But these high ranking bosses were from a host of well known organizations that are still around and in existence today. These are people who call themselves professionals, who also call themselves compassionate- they thought they knew more or new better than me. Unfortunately, these professionals in the disable field, employers, psychologist, and doctor's are way too many.. Actually to think about now, bother me, or hurt me anymore in my life, because I have moved on and away from the hurt, pain, and residue. I have healed and truly want to let go of these memories that have shaped my life. I want to help others, instead, to work thought their own- by what I have experienced in mine.

These so called professionals have wanted to probe my physical well being, and make sure I was emotionally stable- They have investigated and inquired into my life in ways that made me feel humiliated, judged, less than normal, scared, nervous, hopeless, and even helpless at times, but I was like a Trojan horse ready to surpass attack. I kept carrying on despite them, in an honest, triumphant, and truthful way.

Instead of making an individual comfortable within their own being, and rewarding them for their conscientiousness and integrity, they made me feel like I was on trial, or was a criminal who had committed the worst kind of crime!

Why, you may be asking yourself? Because I worked my hardest with the abilities I had before me I worked to accomplish my duty's all the time. I worked with an accuracy and a perfection, and I always came into work happy, with a kind word, and a smile on my face looking forward to each and every day. I never let my Cerebral Palsy or learning disability get in my way. I worked to over-come them, as I worked to be like the norm, and I did what was asked of me no matter what.



Most the times, though, my work was better. It was better than a person without a disability! I never worked to compete with others. I worked to accept and be in harmony with those around me, however, they could not, see it! I wanted so desperately wanted to fit in, I wanted them to accept me for me, the hard work I completed and performed, and as an equal, individual wanting to work in the work place as a team player, a leader with a balance. An individual with the same qualities as everyone around me. I wanted to be equal to, or have the same kind of equivalents as them all.

But I know differently now! I know what this world is like. I have dealt with people, and have had many experiences to make me strong, which alert me to these acts of in-humanity. I have been introduced and made aware of- and have lived in a world where people have this ruthless way about then, where they must be better than the next guy, desiring more success, greed, power, and control.

These people could not, nor were they willing to, so they hurt me and belittled me in the process. They did everything they could with-in their power to make me believe contrary to the truth at hand. But I grew up, and I saw beyond the truth, and, their conniving ways. They tried to put me down, and pull the wool over my eyes, in ways that were de-humanizing! In the long term I rose above them all! And I am grateful for these lessons. I am indebted to them as I came out the winner, Maybe not financially, But morally, I did indeed!

These people have been very threaten of me, and the way I conducted myself. They were intimidated, and afraid that I could do better or go farther and, you know what- I did! I really did! Perhaps I did do a better job- perhaps, better with one hand, then they could with two!

But with all judgment aside, and all do respect, these professional in these communities were indeed threaten of me. They were frighten of, or overawe as a hostel individual or human being of what I said, stood for, or was trying to do in my job, life, as an honest, free of deceit, whole-hearted manner.

Thus, I have set my own bar of excellence. And, I have continued to raise it. Yes, I may not have held a full time career like the norm, but I have lived my life by my own standards of truth, and honesty. I have had the soundness of thought and mind to live my life in a mindful and whole way, with internal consistency, and lack of corruption.



I have lived my life today never doubting myself, my abilities, my good character, my principles, or by selling myself short in a deceitful, conniving way.

Thus, in closing, I will continue to live my life in a trustworthy, dignified, truthful, sincere way, and to be a light and an example for others to emulate.


Read more!

Normal - So what is normal

Normal- conforming to a norm, standard, regular, a normal temperature. ( psychol.) Conforming to the standard or average for a particular type or group (loosely) mentally or emotionally sound. (math)Says the New Webster's Dictionary and Thesaurus.



So what is Normal to you?

Being normal to me, is being able to accept myself as I am in totality. It is being able to accept myself as our maker has made me- including all the trails, challenges, and joys of my life. Seen and unseen; It is being able to accept what happened to me when I was only 5 months old. And, it is being able to see the whole of me despite what others may think. Which really is none of my business at all!

My business is to continue to carry on- it is to continue to be the best person I can be no matter what. Normal to me, is learning about myself, and reaching beyond in all area's of my life- mentally, physically, and spiritually- It is truly being able to see how my maker wanted me, to rise above these challenges, that have not only confronted my spirit, but have shown me who I am, even with my Cerebral Palsy, and a learning disability, and what I could become, achieve, contribute to the world, and rise above...

Being normal could also be what we think others want us to be. That we don't fit in or act or speak, or dress a certain way. Normal to one person is not normal to another, as we all see things in our lives, in a different perspective and light. We all have thoughts, and feelings, and issues, that we deal with on all different levels. However, if we could not lay labels, barriers, and stigmas on others human beings, to make them feel ugly, inferior, or desperate inside, because of our own belief system, or what society make us to believe- we would find out that we are ALL normal

Everyone is different and unique in their own birthright. You can see some disabilities while not others. Who is it then, for us to judge another person, or say what is normal


Read more!

Integrity

I got to thinking about this word, integrity, and I realize I have stood behind myself, my words, and my beliefs as a human being, and, a person with Cerebral Palsy and a learning disability a hundred percent of the way- throughout my entire life I have believed in myself when others didn't. I proved myself even though other didn't think I could accomplish or achieve. I fought with my own, strong, morel conviction. Not bowing to others with wicket tongues. When I was called Mentally Retarded it hurt- of course it hurt! Very badly but I gathered my strength within myself, and I made those negative words and statements into positives with a shield and a sword that could fend of the worst of the worst.

I continue to think to myself... why is it that I am so pure, honest, direct, and sincere? Why is it that others can't see that within me. Why is it they cannot acknowledge this or praise me for this or help me in the little way I may need helping? I ask myself... why can't people handle my honesty?; Is it because the world is not that honest, and they are ONLY out for their own selfish self?



Tell me! Are we living in such a world where people only look out for their own good and do not really care about others, or helping others?

I hate to say this, but I do think so! Yes, there are a handful of us out there... who are willing to help others go the distance, and they open amazing doors for others... they give and share of themselves genuinely and completely. But that is not the norm in our Competitive world and society today. My belief has always been to help the next guy. So together we could live in peace and harmony and make a difference together. There is Always room for all of us to have a piece of the pie. There is always room to be happy and spread that happiness to others! But only if WE are willing to share these gifts with others and do not let our greed, our power, our suave abilities or ego's to get in the way of our usefulness.

I do not believe in using other's just to get ahead ourselves. I believe in all good things. I believe in the integrity of helping people to feel good about themselves I believe in the whole person, and in healing one's souls I believe in helping others feel good and worthy of themselves, body, mind, spirit and in heir thoughts and ideas. I believe in genuine kindness- and, I believe in living together in peace and harmony- walking side by side without judgment or fear.

Our world has to much hate and anger in it. It would be so sweet if we could dissolve it like an air balloon letting go of its fuel never to be ever again. I think if we all could contributed just a little, tiny bit every day, in some way, to bring a kind word or deed to others. Our world would start to mend and heal. We would not live in the chaotic way which we do. This act of sharing kindness to others would make a big difference in our society, and contribute to own integrity as a person, a state, a nation, and a universe all around.

My integrity has lasted me all my life, and it will continue, as I am going to keep it for ever more!


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Cab Direct E7 Taxi With Dedicated Wheelchair Access On Show At Liverpool Taxi & Private Hire Exhibition

COVENTRY - July 29, 2008: Allied Vehicles, manufacturer of the Cab Direct E7 taxi with tailored wheelchair access, is exhibiting at the Liverpool Taxi and Private Hire Exhibition 2008 at Kings Dock Arena, this week, July 29/30.

Taxi drivers visiting the exhibition will be able to see the E7 up close this week and find out the many other benefits this vehicle has to offer over a conventional TX4 black cab. A lower purchase price, superior fuel economy, longer service intervals and modern design are just some of its key attributes.



The decision was taken to support the event, despite the fact that Liverpool City Council’s licensing committee has refused to grant the E7 a Hackney Carriage licence.

BBC TV Northwest highlighted the case being brought against the Council’s licensing committee by wheelchair user Alma Lunt and Cab Direct over their decision to snub the E7. Disability groups representing thousands of wheelchair users say the E7 offers a far safer and more practical solution to that which currently exists.

The TV footage showed Mrs Lunt take journeys in a London-style black cab and then an E7, to highlight the major problems she faced. Mrs Lunt was securely strapped in to the back of the E7 while facing forward and wearing the correct three-point seatbelt, something not possible to achieve in a London-style black cab.

Liverpool City Council is being taken to the High Court by Mrs Lunt and Cab Direct over its taxi licensing policy. The Liverpool Wheelchair User Group is also supporting the judicial review test case.

Gerry Facenna, Chairman of Cab Direct said, “We are delighted to have the opportunity to let Liverpool taxi drivers have the chance to find out for themselves the benefits a more modern and accessible cab offers. With regard to the licensing issue, we’re not seeking special treatment from Liverpool City Council, just a fair opportunity to offer a safer and more convenient solution to the local disabled community. We’re hoping common sense will prevail.”


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Theatre takes to streets for Stockton International Riverside Festival


WANDER down Stockton High Street this week and you might bump into slippery slinkies, an oversized ghetto blaster, trampolining acrobats, hip hop dancers and break neck stiltwalking.




World class street theatre companies will deliver a range of performances throughout the five days of the Stockton International Riverside Festival, starting today.


Australian company Stalker brings Stiltbreak to Stockton and with it a fusion of breakdancing and hip hop style with power packed stilt performances at the weekend.

Fellow Aussies, Bedlam Oz, make a welcome return to the Festival with the unforgettable Slinkies, performing five different comical mini shows on Friday and Saturday.

Tomorrow the High Street will be transformed into a beach for Desert Island Discs by Artizani - a show full of gags, tightrope walking and buried treasure.

A caravan parked up on the High Street provides the perfect place to relax thanks to Impossible Theatre and their Chromavan, using miniature and innovative LED lighting technology to create a soothing light and colour experience. Catch them tomorrow.

World music, rock and jazz are also fused together in original compositions by French musicians Le Grosse Couture tomorrow, at 7pm.


Tonight Flying Dragon Circus kicks off the Festival in majestic style at 7.30pm at Trinity Gardens.

Meanwhile the Without Walls consortium is aiming to present and develop the work of the next generation of British performance groups working outdoors.

The passion of the tango gets an extra dimension thanks to extraordinary lifts provided by Wired Aerial Theatre who will perform on Church Road Plaza on Saturday and Sunday.

The Tavaziva Dance Company presents Beautiful People – a unique combination of contemporary and African dance styles. They perform on Stockton High Street on Friday and Saturday.

In the same location, Gulliver’s Boom Box by Company Fierce offers a funky and hilarious take on street dance styles since the 1970s.

For full details of times and venues for the Festival, including the Fringe Festival with headline acts Happy Mondays and Super Furry Animals, go to www.sirf.co.uk

Festival-goers are invited to upload their pictures at www.flickr.com/groups/sirf2008


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Stockton International Riverside Festival

Malaya Now in its 21st year, Stockton International Riverside Festival is Europe's largest free open-air gathering, featuring a diverse five-day programme of outdoor theatre, street entertainment, circus, music and dance.


With its unique form of theatre performed among the crowd, Close-Act is set to be one of the highlights of the festival, providing a show that aims to tap into viewers' dreams and nightmares. Beginning as an adventurous journey through space, Malaya (Sun, Aug 3, 10pm, High Street) is played out in a fantastical world populated by fire-breathers, stilt-walkers, marching percussionists and singers in hot air balloons.

Also famed for creative stage set-ups is Exos, which creates otherworldly performances through circus, dance and theatre. Using a dreamlike setting, its show, Suma (Wed, Jul 39 until Sat, Aug 2, 10pm, Sun 9pm), will transform Stockton's Parish Gardens into an ethereal landscape.

Metro-Boulot-Dodo, meanwhile, will be showcasing part of its outdoor installation project, Four Seasons. Each year the group creates a new piece of art reflecting the different stages in a person's life. Journeying from rebellion and recklessness to responsibility and mortality, Winter (Wed, Jul 30 until Sun, Aug 2, noon, Municipal Buildings car park) promises to be a chilly place where icicles and snow shakers reign supreme.

Wed, Jul 30 until Sun, Aug 3, various venues and locations across Stockton on Tees, times vary, free. Tel: 01642 525199. www.sirf.co.uk


Read more!

29 July 2008

Listen to a live interview of Brandon Ryan




Jim Sidelucki interviews Brandon Ryan about his book, The Emotional Struggle


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Miller's tale of Paralympic success

By Elizabeth Hudson

As the Beijing Paralympics fast approaches, all of the Great Britain team are putting the final touches to their preparations and is the same story for Stephen Miller, who will be chasing yet another gold medal in the club throw.

The 28-year-old will be one of only two competitors on the GB team (javelin thrower Kenny Churchill is the other) who will be bidding for a fourth consecutive individual gold in the same event in Beijing.




















Miller's event is contested by athletes with cerebral palsy who use a wheelchair. They sit and throw a wooden club (which looks like a skittle, but weighs almost 400g) backwards into the field of play.

The 28-year-old from Newcastle was born with a form of cerebral palsy which results in a lot of involuntary movement and his F32 category is the most severe cerebral palsy class at the Paralympics.

But he has enjoyed much success in the sport, making his Paralympic debut in 1996 in Atlanta, where he was the youngest member of the GB track and field team, and took gold.

He then went on to retain his title in Sydney and Athens and is the European and world champion and the world record holder.

He is also a noted discus thrower and will compete in both events in Beijing.

Away from the field, Miller has also been working on another major project and after two years of hard work, his autobiography is about to be released.

Entitled Paralympian: My Autobiography, it was launched at Newcastle's St James's Park on Thursday.

Fittingly for Miller, who is a Newcastle United fanatic, the forward to the book has been written by manager Kevin Keegan, who first met him many years ago and has followed his career closely ever since.

Keegan writes: "I know how hard it is to compete at the highest level, and it's no different in any sport.

"It takes dedication, courage and self-belief, and Stephen has those qualities in abundance.

"His story is truly unique and inspiring, and at his young age I'm sure he isn't done yet."

In the book, Miller describes how important it is for him to keep focused on the positives in his life.

"Everyone has things he or she can and can't do.

"When it boils down to it, the things I can't do are pretty boring and mundane - making a cup of tea, tying my shoelaces, cooking a meal, driving a car.

"Admittedly, it can get me down when I realise I probably won't ever be able to do a lot of these things, but not for long.

"Here's why: things could be worse.

"Things can always be worse. Life is life, a gift, a miracle. There will always be someone in the world worse off than you, and that's a good thought to keep in the back of your mind."

Now, as he works towards Beijing, Miller believes that these Games will be his toughest ever, but he insists he will be ready for the challenge.

After recovering from a hip injury, he recently threw a personal best at the Cerebral Palsy National Championships in Nottingham, beating his previous world record mark of 34.93m with a new best of 35.98.

Unfortunately the throw could not be ratified as a world record because it was not an international tournament but it gives him a boost as he gets set to take on his rivals in China.

And success in Beijing will mean another chapter can be added to his life story.


Read more!

Celebrating 60 years of Paralympic sport

By Tony Garrett

The Paralympic movement has come a long way between the first International Games at Stoke Mandeville, which began 60 years ago today, and the Paralympic Games, which start in Beijing on 6 September.

Developments are constantly being made on and off the playing fields and in the way the events are covered by the media.

Back in 1948, Sir Ludwig Guttmann, a neurologist who was working with World War II veterans with spinal injuries at Stoke Mandeville Hospital in Aylesbury, began using sport as a vital part of the rehabilitation programmes of his patients. These became known as the Stoke Mandeville Games.

A milestone event took place in July 1948, when Guttmann established a competition for patients with spinal injuries to coincide with the London Olympic Games. Sixteen paralysed British ex-servicemen and women took part in an archery competition.

Since then the "Parallel Olympics" have become the pinnacle of international competition for disabled athletes. The name derives from the Greek "para" ("beside" or "alongside") and refers to a competition held in parallel with the Olympic Games - no relation with paralysis or paraplegia was intended.

The first official Paralympics were held in Rome in 1960 and it has grown in strength since then.

At the end of August, the "Test Event" (as the Olympics are known in Paralympic circles) finishes and we can look ahead to the 13th Paralympics.

People often ask why the Paralympics are not scheduled before the Olympics.


















In Athens four years ago and now in Beijing we have seen the answer - the host organisers clearly would have struggled for different reasons to ensure that the Paralympics would be ready in time.

I have been involved with disability sport and the Paralympic movement for many years and each Games creates a tremendous buzz and excitement in the build-up.

My first involvement came many years ago as an international wheelchair table tennis player.

Although ranked in the top three in the country for quite a few years and being able to compete at World and European Championships, selection for GB to participate in the Paralympics just eluded me.

The first time BBC Sport covered the Paralympics in depth was in 1980 when, along with producer Jeff Goddard and the legendary Welsh rugby player and broadcaster Cliff Morgan, I covered the Games in Arnhem.

After that it was time to concentrate on my business career within the BBC working across Drama, Sport, Finance HQ, Documentaries and back to Sport and it was not until Sydney in 2000 when I resumed Paralympic duties.

Although I was not in Sydney, with the time difference, there was a critical role to play in London to ensure that across radio and online our listeners were kept in touch with all the news and action from a tremendous Games for Team GB.

Athens proved to be a successful Paralympics, both in terms of GB medals and the BBC coverage. BBC Sport was later recognised with an award from the International Paralympic Committee as the best international broadcaster from the Games.

That led to me going out to China on behalf of the department to receive the award and experiencing for the first time the culture of China.

British Paralympic legend Dame Tanni Grey-Thompson and I spent some time wheeling around the streets of Beijing, and then there weren't many disabled people visible.

It will be interesting to see whether the attitudes of the Chinese people have changed in the past few years and I honestly hope that the real legacy of the Paralympics will see much better access and acceptance of disabled people throughout China.

One of the first benefits of the Games coming to China is improved access to two of the best known historic monuments.

Tourists with a disability from all over the world will now have much better access to Beijing's most famous Forbidden City and parts of the Great Wall following extensive renovations.

As we get nearer to the Games media interest has heightened and a real multimedia approach is driving us forward.

The catalyst this year was back in May with the Paralympic World Cup in Manchester, of which BBC Sport transmitted two hours of live coverage.

There has been real interest across all outlets with international stories surrounding South Africans Oscar Pistorius and Natalie Du Toit bringing Paralympic sport to the forefront of the sporting news.

With some prompting, programmes across the BBC are ensuring that they are covering both Olympic and Paralympic stories in unison.

I am sure the Beijing Paralympics will be a successful but very challenging Games for broadcasters, but it is one that we are looking forward to.


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28 July 2008

Keep on Keeping on

Last night I received a very warm email from a new friend whom I met on the Internet. It warmed the deepest part of my heart because I could feel the words she wrote. What kind of learning disability Her words began rejuvenating my soul- lifting my spirits- And as always, her words helped me to see, once again, that all which I do has meaning and purpose and is not in vain

Yes, I can't deny the fact that after all these years I'd like to be known or recognized, or be invited as a guest speaker and get reimbursed for going out and delivering these words of peals to all those that want to hear me. I also want to be known for making a huge difference and contribution to other people’s lives.

Oh how I want to give back to the world and to others with disabilities to let them know that they are not alone! It is so vital and important to others and to myself to do this- it sings out to me in melodic form and lyrics, and it brings to mind one of Beethoven's musical pieces. It tells me over and over again that all of this is so very worth it! All the challenges, all the joys, and all the time in my life I have spent making something of myself.

When my girlfriend wrote these words, I could feel my heart skip a beat, and I knew deep down inside that even if I don't become a well known keynote speaker, and if I don't get paid for what I do, that all of my actions here on earth will not go in vain. I know that what I do comes directly from my heart. It come with a sincerity and a goodness within the deeps of my being, to help all that want and ask for it- and It comes from the love inside of me!

Still, after all these years of hard work, effort, determination and action, these kind words are my payment. They are my source of inspiration and reward they are my hope, and my faith They are my bread and butter

My hope is that someday an angel, a miracle, an intervention will come to pass for me Someone will hear my prayer some how somewhere in this all encompassing, competitive, world of ours, some kind soul will recognize me and hear my plea- and my word- and they too will know- they will have been touched- and some-how with their clout they will help me over my bump and hurdle. My continuous hope, and prayer is that this kind someone will find the goodness in their hearts to reach out to me, to make a difference, in not only my life, and help me to open the doors, but ultimately, to help others even more-



I have spent my entire life doing this work that I do for little or nothing and only for love in return.



I'd like people to know that I need to do this to live and breathe; It is the air that keeps me going- It is who I am, I need people to know that this is my lifeline- and that I need to do this for not only the good of all man-kind but for my inner-self- it is to be a productive person in society- being able to be independent, self-reliant, self-sustainable by providing and putting my own bread and butter on my own table...

I need the world to know that even people with Cerebral Palsy and a learning disability can succeed- and that they can earn and make a living at something they love to do- I need them to know that our bodies may have impairments but our minds have the same needs, wants and desires, as all people despite what professionals and experts; make us; and other to believe. We can work especially at something we are good at doing! I need to share this with all my readers, and the world! There is wayyyyyyyyyyy more to living than being labelled, put down negatively, or abused by others who call themselves professionals or bosses There is far more for us to do than just work in a workshop setting, or sit at home watching t.v. or sitting on the computer to pass the time of day-



I need all you readers out there to know this, I need you to know that I/we have desires just like everyone else does. I need you all to know that I don't want to be taken for grated anymore either. For once in my life, I'd like to make it on my own- living in society- working for a living, and being content with-in my own being. I'd like everyone else to know that I/all those with disabilities have desires and talents. we can succeed if given a chance and the opportunity to do so- Time and again I have proved myself- I would like not to be taken for granted anymore- or settle for less than what I am worthy of- just because I have a disability doesn't mean you can step on and over us like dish rags- Yes this anger's me- it anger's me very much!

I really need to let you, my readers, know, that I want to make a difference in my own life by making my OWN livelihood, doesn't matter if I am married or not, I need to feel my own dependency- on and for myself- doing it my way... I want people to know and understand that I have ALWAY paid my own way for everything I have done in my lifetime- I have not begged or pleaded for donation of such for anything like some I've come in contact with- I can do anything I put my mind towards doing, and I have proved this fact through my actions time and again- 



For once in my life I would like people to know and understand that yes, I do, do this Always from the goodness and unconditional love of my heart; but that's where it stops now. That's the bottom line here and now. I need others to know that I too need to be compensated for my actions and talents and first hand knowledge now- and until people recognize this- and take me seriously I will keep knocking until opportunity knocks

Until then, I need to keep hearing these words and I need to keep reminding myself to be very grateful-these words are the precious words that are my reward and payment

They are sweet as sweet can be And they reaffirm my goodness. They reaffirm my abilities, and they are a direct result to all the action I have taken throughout my entire life to make me who and what I am today. Over and over again when someone says something like this to me, this quiet warm glow comes over me. It make me radiate peace and harmony and it bathes my being in joy and happiness.

This voice reminds me to not take things for granted and to be grateful for every experience in my life that I have had to ever go through. It also tells me how far I have come, and where I am going- this inner-voice reverberates revealing gentle messages telling me why I do this and why I keep on keeping on It reaffirms to me how it must be, and why where-ever I am today it's where I'm suppose to be! Because I would be somewhere else if it were meant to be!

And thus, it makes me feel quiet inside knowing that someone else recognized my goodness and took the time to tell me who I truly am


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I am Only One Person

Time and time again I think to myself how different this world is than when I was a child. How different it is since I was a young adult just starting on my journey. And how different life has changed and is today.

I am only one person, but it would be so nice to see people giving of themselves freely and unconditionally in a genuine way, or to see acts of kindness shared more often. I am only one person in this world we live in, and I will continue to make a difference in man kinds life in which ever way I can.


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What Can I Do

This morning I received a Google alert on learning disabilities, and, oh how I wanted to participate and get involved, and work with these people and share with them what I know to enlighten them. However, the position was in England I believed. It was being part of a council and having a voice for all people with LD to make legal changes in our system, and laws, and to help individuals with learning disabilities.

If people would learn to take our word seriously, that would be such a blessing! Not only for all the millions and millions of individuals, but to get real, honest feedback from people who have paid the price mentally, emotionally, or physically, instead of thoughts who have never experienced having a challenge like this at all.



This would be a sincere humbling; if organizations, companies, our government, legislation, and leaders would take a positive step forward to hear our voices and put us on committee's and councils to change the way things are now... It would be a gift to all society and man kind if we were heard and truly listened to.



It would be even sweeter if we were compensated financially for our knowledge and really taken seriously. I personally would fight the good fight to bring all kinds of change to make a huge difference and impact for others as I have done for myself First I would stop categorizing us with people of down syndrome, mental retardation, ADD and so forth. I would also find a much better word to describe us. I would not use degrading, heart-wrenching titles; and labels such as: developmentally delayed or disabled.

I would do all I could to first de-signify people who never chose to be disabled in the first place, or to be labeled. I would start by finding real human ways and approaches to treating us with dignity and respect.


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Music in Mind and Body

Music and Dance have been a gift to my life ever since I can remember. I began dancing at the age of 3 1/2 years old. And from the moment I heard my very first piece of music, and performed my very first shuffle ball change, I knew the difference it was making in my life. It brought a peace, love, and joy to my inner being as well as a self- worth and confidence that have helped me in so many other goals and dreams I have achieved throughout my life



Not only by listing to the sounds and rhythm's of each music, and melody presented to me, but through share willingness and determination to execute these steps and techniques, accurately, even though my body had a physical impairment and challenge of Cerebral Palsy, did I, or was I able to weep and see not only me developing my abilities, but conquering the challenges before me.



These daily and weekly lesson's brought to my body, mind, and soul something I have carried with me all these years later. It all began way back when. But before anyone knew what positive affects and effect's it would have on a persons spirit and life, let alone a person with a physical disability or learning disability - I knew the benefits it gave me.



I know how music, and dance have straighten my body, brought peace to my heart, and helped me to develop my coordination and so many other things the experts talk about today.

I am only me. I may not have financially been able to conquer my education, or get or be given a degree, because of some knowledgeable person who tried to dictate what they wanted for my life. But I have soared, attained, and accomplished goals in my life, without this piece of paper; they call a degree and I am an expert in my own right.



I know more through personal experience than most book learned people;. I know first hand how music and dance have helped me. It has not only been physically, but it helped me with my learning and with my thought processes as well.


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27 July 2008

Never Stop's

I've been on automatic pilot for the last week everyone! I have been writing letter after letter, now, and pounding the pavement while making myself visible by writing letter after letter about the work I do and want to do. If any of you have tips about marketing and networking in a special specific field, would you be so kind as to write me. Thanks


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Getting Around A System That Doesn't Work

Dear Readers, how awful is this! I got to thinking today how every aspect of a disabled or special needs person's life is scrutinized by Helpful Expert who assume God like powers over our goals, our dreams, our thoughts, our abilities, including our wishes to have a livelihood of our own. How dare they step in front of us and block the way of our natural flow. Everything from a career choice, to how we put on our shoes and socks. Better yet, how we even go to the bathroom, is subject to morbid interest and thorough examination. It is critical, meticulous and malicious. Yet, they seem to pull it off.

Our genuine desires as human beings, to led happy, productive lives is intentionality disregarded as they fail to consider our expression of success and happiness. We are never really taken into real consideration. Even if we have some kind of challenge, as a disabled person, our desires to attain our goals or degrees, aught to be recognized and respected. Even if it is just going into work. It would be a joy to have a say so in our destination which society pays no attention or heed to.

This infuriates me to no end, as time, and time, and time again, I have strived, and attempted, and fought for every ounce and every bloody achievement that I have made today. These years of fighting with a system that does not see us as worthy to listen to, have indeed left their scars.

If only our struggles were given the same importance as other suppressed people, it would make life a whole lot easier. Instead, precious years have been frittered and thrown away, down right wasted, trying to get around artificial barrier's of the worst kind. My dear friends, this struggle is often hidden from people who do not experience it directly, but is no less real.

If I can bring this idea into your heart's and minds then my life long work and struggle has been worth the while.


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